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Old 06-17-2009, 07:09 PM #8
slskckjebw slskckjebw is offline
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Join Date: Jan 2008
Posts: 195
15 yr Member
slskckjebw slskckjebw is offline
Member
 
Join Date: Jan 2008
Posts: 195
15 yr Member
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I am considering LDN. I want to see what this neurologist says on Monday. I want to check him out and see if he might be open to that idea.
I do not understand LDN or really know what it is except for what I have read from others who use it.
I am also considering another one on the crabs and I am sure I do NOT want an IM or one that causes the awful flu symptoms. I never got over that problem.
If he is not I have another neurologist on my list.

Thanks!
LA

Quote:
Originally Posted by Judy View Post
LA -- I'm sorry you seem to be down in the dumps right now. Probably everyone here has felt that way at some point during the course of this lousy disease......you're not alone. Of course that doesn't help how you're feeling.

Have you considered trying one of the other CRABS? None of them agreed with me -- nor prednisone or solumedrol -- but I've been taking low-dose naltrexone (LDN) for a few years now and am very happy with the results. Taking a capsule everyday is so much easier than an injection. Have you done any research about it? There is a sticky on this site with links to other places.

At my last neuro appointment, he said that for the number of years I've had MS, 19 official and most likely 14 before diagnosis, I should be in worse shape and that the LDN must be working. Just a few thoughts for you to consider.....it's way to early for you to completely give up!!

Take care.......
__________________
LA
Optic neuritis May 2007 and again January2008
Diagnosed February 13 2008
Started Avonex February 22 2008 (still progressing)
July 2009 started Betaseron.....

"Don't argue with an idiot. People watching may not be able to tell the difference."
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