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Has anyone ever gotten to the point where they decided they were DONE?
I have been taking Avonex injection for more than a year and have had progression. I can NOT do it any more. I skipped last weeks injection and will not be taking this weeks injection. I see a new MS doctor on Monday because my other one retired. I went off of the prednisone too. I could not take it any more. I am feeling better. Not great, but better. I was told by my psychiatrist that combining the anti depressant I am on and prednisone was not a good idea. My MS doctor wanted to do it anyway. So I started a very low dose of prednisone. It did help my legs a little. I could tell a small difference and I am sure it would have been more impressive at a higher dose, but he wanted me on it long term. I stopped taking it. There has to be a point where you have to stop. How many drugs can they expect me to take? I am still on the ones I need for trigeminal neuralgia and spasms, and the AD, but I have to live my life too. I take provigil to help keep me going. I can not put that needle into my muscle any more. ![]() I feel battle fatigued and I have only been at this a year. LA
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LA Optic neuritis May 2007 and again January2008 Diagnosed February 13 2008 Started Avonex February 22 2008 (still progressing) July 2009 started Betaseron..... "Don't argue with an idiot. People watching may not be able to tell the difference." |
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