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Old 06-20-2009, 04:25 PM #5
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
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Hello SaskMom and Welcome to Neurotalk! You will meet many great people here who i'm sure will try and help you if they can so feel free to answer any questions you may have!!

I'm sorry to hear about everything that you are going through right now! I understand how frustrating it is not to have a diagnosis so really feel for you...

I don't have MS but have a condition that is similar in many ways known as Complex Regional Pain Syndrome (CRPS/RSD). I have a lot of the symptoms that most people with MS have and was told by my Pain Management Doctor that CRPS and MS are very closely related. No one has done any tests to rule out MS in me, I really wish they would seeing as I have a lot of the symptoms but for some reason they wont.

My nanan had Progressive MS and passed away about 7 years ago when she was 56 years old (I was about 7 at the time). She developed RSD when she was about 38 and my mum was still a teenager though it took years for her to get diagnosed.

Her first symptom was blurred vision. She woke up one day and couldn't see hardly so went to see the GP who said she might have either MS or a brain tumour so sent her to the hospital. The hospital were useless and kept dismissing her symptoms until it got to the point where they could no longer ignore them. I think it took about 6 years for her to get diagnosed my mum said and my mum had to look through her medical notes to find out what was wrong ... apparently the drs had known for years that she had MS but refused to tell her.

As the others said, theres quite a few other conditions that can mimic MS so don't be afraid to ask for tests to rule out any other possibilites.

I really hope that you don't have MS and that whatever is wrong can be easily fixed! You are in my thoughts and prayers and please know that you are always welcome here !!!

Alison.
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