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Old 06-20-2009, 08:15 PM #6
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FaithS FaithS is offline
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Join Date: Jan 2008
Location: Kansas
Posts: 971
15 yr Member
FaithS FaithS is offline
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Join Date: Jan 2008
Location: Kansas
Posts: 971
15 yr Member
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Welcome, Jayne.

I grew up in Saskatoon. I married an American from Kansas 25 years ago, so I live here now. But, I've retained my Canadian citizenship, and usually get back to visit family every year.

Initial symptoms, for me, were stroke-like. Woke up in the middle of the night, unable to move my left arm and left leg. Took 2-3 months of PT and OT to regain use. Was originally dx as a probable stroke.

But, when I had another flare, 3 months later, with different symptoms (extreme fatigue, fainting, loss of memory -- I don't remember April and May of 2002, manic thoughts and behavior), they knew that I hadn't had a stroke, and that it was something else neurologic going on.

Went to Mayo Clinic in Minnesota for about 2 weeks of testing, but even they could not dx me, at the time. Was finally dx with MS almost 2 years later. MS had always been considered as a possible option, but, for a long time doctors thought my symptoms (which are fairly atypical for MS) more closely resembled Central Nervous System Lupus.

Hope you get a quick dx.

~ Faith
__________________
aka MamaBug
Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008
Betaseron 11/2003-08/2008; Copaxone 09/2008-present
Began receiving SSDI 11/2008
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