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Old 07-27-2009, 03:25 PM #1
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Dejibo Dejibo is offline
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Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
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Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Frown My Copaxone Holiday is over

I was granted a two week break from Copaxone to see how many of my side effects would go away.

the night sweats left, the night heat left, my eyes have ALOT more moisture. I have less fatigue, and have been feeling better.

Spoke to the MD today who said he was NOT willing to have me take the risk of NO meds for this dread disease. He went on to explain how sinister this disease is, and how i am surely risking a relapse, and how he wants me to be as healthy as possible so when a cure comes out, or a better med to fight this with, I wont be too disabled to qualify. He would feel horribly if he didnt do everything within his power to insist that I pick and stay on a treatment. so, he gave me some choices.

1. I can chose to switch to Avonex, but because I had such a dramatic liver enzyme increase while on Betaseron, he expected that I would have the same with Avonex. Wouldnt know unless we tried kind of deal, but he would put that out there.

2. I can switch over to Tysabri. He told me I am the "perfect" candidate for this treatment, as I am low on the disabled scale, and while I have a few deficiets from past relapses, I am not severe. He said to start this drug while I am in such place in this disease makes me ideal, and exactly what TOUCH is looking for. He would provide for me to have an IV port since my access is so horrific.

3. I can just tolerate the side effects I am having with Copaxone, and hang in there for as long as I can with what I am given. He said he knows, and is understanding that ALL MS drugs are difficult to take, even those that say they have the least side effects, he wants me to know that he thinks Copaxone has been doing a good job for me. He would prefer that I restart Copaxone and hang in there till I cant take it anymore, and then we can pick one of the others.

He made it clear that he would NOT be accepting of allowing me to go bareback through the world of MS, and since I dont qualify for LDN, and find Ty to be so dramatic, that he was going to really push hard for me to pick. Let me know how the whole staff was there for me, night or day, questions, or problems...you know the drill.

After speaking to the husband, and debating, and crying, and having my temper tantrum, it has been decided that I will restart copaxone tomorrow. I was quite upset by this. The husband is completely on board with the MD and refuses to accept my desire to go bareback through the world of MS. While I am willing to accept certains risks, and be willing to pay the piper should the bill come due, he has real issues with me being willing to risk popping into SPMS or a higher level of disability when all it takes is a daily shot. He went on to try to bargain with me. he would do all my shots, I wouldnt have to worry. ice cream everyday! blah blah. like i am 3 and needed to be coached into it. Sheesh!

So, there you have it. my 2 week Drug Holday is over. it was fun while it lasted, but for now, am going to pick up the Copaxone needle and keep shooting. now, if I could just find a better attitude. I know I will have to turn my mind around, and find something positive to look upon to keep me motivated to do a good job.

Thank you for all your love and support, and private and public displays of affection. You guys mean so much to me. no one else gets its like someone who is already walking a fair mile or two in your shoes.

I am off to find ice cream. I was promised ice cream!
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



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