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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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Hi All-
First, please forgive what may seem as short or terse tones in either my questions or responses. I two finger type so I tend to keep things short and to the point. Takes WAY too long for flowery phrases. No offense EVER, EVER intended. I'm a 56 yr old male diagnosed 3 mos ago with MG. Had the bulbar form-just woke up one morning with tongue, jaw, palate, facial, etc. muscle weakness- bad. The couldn't lift eyebrows, choke on your own saliva, couldn't eat type of bad. Had a positive antibody test. Questions- 1- Anyone else here with this form of MG? 2- Anyone here used Huperzine-A instead of mestinon to control their symptoms? 3- Has anyone here ever had - or know first hand of anyone - having had ANY form of MG go away on its own WITHOUT drug(steroids, etc.) or surgical intervention? 4- Is there anyone here who started out with the bulbar form that eventually spread to generalized muscle weakness? Or did it remain pretty much in the facial/head area? Just looking for some common ground and answers that my neuro was unable to confidently supply. Neuro is good- no probs there. Just doesn't know every answer to every question. Aries51 |
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