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Old 10-03-2009, 02:56 PM #10
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Aries, Hi and welcome.

I believe it is possible to make the immune system happy and lessen any disease. I do not believe it is possible to change a person's genetic makeup (yet) to the point of getting rid of the disease. Celiac disease is about the only one where all the symptoms can be gotten rid of by not eating gluten. The genetics of the disease are still there though.

They, doctors, really only classify MG as ocular MG and generalized MG. Once it goes past only the eye muscles, it is considered generalized MG. That sounds like what you have. You may not even notice yet that arms or legs are weak. It's easy to not notice things that come on so slowly. A person just gets used to it.

I've never tried Huperzine-A. Until it has gone through stricter regulation, I won't either. Why? Because it can make MG much worse if we don't know what the strength is! A person can get too much acetylcholine and end up in what's called a cholinergic crisis. Not fun. It's where you are very weak and cannot breathe well due to weak chest wall muscles.

I'm sorry you are having such trouble. MG is not fun. I hope you will continue with the neurologist who follows your care.

Nicky, Here you go. I worry about not only safety but dosing, overdosing, etc.

http://www.iherb.com/Search?kw=huperzine%20a

iherb is a great company. I have gotten my supplements there for 10 years. All brands are not created equally though!

Mestinon is very useful. I am one who does not have any side effects of it. It does help with symptoms. Could it hurt to try it?

Aries, Please do beware of people who say that they can "cure" a disease. They probably are trying to sell you something. I'm all for alternative medicine, as long as my primary doctor is in the loop. And I believe that if you sleep enough, get stress out of your life, deal with any traumas, eat whole/organic foods, etc. that you can make your immune system healthier.

I hope you can find what works for you and your MG.

Annie

www.myasthenia.org
www.mdausa.org
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