My turn for a rant today, didn't want to start a new thread, just to complain, I just need to get a few things of my chest, and I know at least if I do it here you will all understand!!!!! I feel like I'm always complaining to my family, although they say I'm not.

Today I'm feeling sick, just totally blahhh, so my MG in turn is playing up.
Had to go to the Dr (my GP) thismorning, and had to ring my nearly 70yo Mum to ask if she could take me, as I didn't think I would be able to make the drive all on my own!!!! Well this just sucks, me only 37 had to ring my dear old Ma to take me to the Dr. Now don't get me wrong, I love that I can ring her, but its just wrong that I have to!!!!!!!!!!
I hate that my eyes are closing as I'm writing this and all I really want to do is go and lie down. I want to be out doing stuff, working, gardening riding my gorgeous horse, if I sitll had him. I want to be able to live in a house where I can have a dog. And yes I do know all the good things about my life, but at the moment things just suck that I am not the person I once was, and can't do things I want to, I hate that I am now like this!!!!!!! I don't expect replies, as this is just a way for me to get down how Iam feeling, I usually feel sooooo much better once I've voiced it. I hate talking to Mum about this, as she hates seeing her youngest child like this.
Kate

Kate,
Isn't it great to have someplace to rant and people will understand. I soooo know how you feel. My double vision has been so bad this week that I can barely function. Driving is definitely out. Yesterday I had to have my younger sister drive me. I know I should feel lucky that my MG is just ocular, but this really stinks. So far the prednisone has not done its thing. Put a calll in to the neuro yesterday and am waiting for a callback. I don't know how most of you with more severe symptoms deal with it.

I hope you are feeling a little better soon.

Kathy

Allen,
I'm so sorry that things are going so bad for you. This MG is a bitter pill to swallow. Mine is just ocular at the present time, so I've been trying to look at the glass half full. Knowing it could be a lot worse. I'm lucky in that I don't work or have kids at home, so that takes a lot of pressure off of me.

No refief on my double vision so far this week. The worst I've had. The mestinon does not help with the DV for me. Neuro put me back on prednisone (5mg), but so far nothing. When I was first diagnosed he started me at 40mg of prednisone. DV was gone by late afternoon the first day I took it. I'm glad he's being more conservative this time with the dosage, but I don't think 5mg is going to cut it. Have another call in to him.

Anyway, enough about me. I can tell by your postings, Allen, that you are very frustrated and angry with your MG. There is a man in our local MG support group who reminds me of you. Maybe men have a more difficult time "accepting" their diagnosis. I hope you find some answers. In the meantime, you have friends here that understand.

Kathy

Kate, I FIRMLY believe that every once in a while, we ALL need to have a GOOD cry AND/OR a GOOD "pity-party". When you feel like you have been sad LONG ENOUGH -- (take your time -- get it TOTALLY out of your system), remind yourself that you are:
1. NOT in a wheelchair
2. NOT on a ventilator
3. NOT using a feeding tube (I do have this right, don't I??)

MG is a ROLLER COASTER. The "ride" is enough to get "whip-lash". It takes a strong neck AND a strong stomach to handle all the twists and curves. You have already PROVEN that you can handle this. You are a BRAVE, STRONG woman -- and I am VERY proud of YOU!!!

(((HUGS)))

Hi Jana,
thanks!! Yes I am thakful for all these things, but I hate the fact that today I can't just get in my car and go down south to the beach like I use to, not even have to think twice. I have to stay at home cos my poor body doesn't function properly. I do count my blessings, its not ms or motor neuron..........................Kate


Kathy, even if it is only ocular, its still hard, cos really you do need your eyes for so much!!!! I hope your neuro can sort it out for you and soooooon!!!
Kate

Hey Kate,

We all have those days and then they pass. I hated my Mom having to see me like that too. I was suppose to be taking care of her, but she was always there for me and wouldn't have had it any other way. Hope you are having a better day today. Take care.

Hugs,
Pat