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Old 12-04-2009, 12:11 AM #4
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Nicknerd Nicknerd is offline
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Nicknerd Nicknerd is offline
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Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
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Hey Simon,

When you say that you couldn't get the words out, do you mean that it was because of weakness, like tongue or palate weakness, or maybe actual voice weakness (laryngeal)? I've got major problems with my speech, that's my main area. I too know exactly what I want to say, but it's very garbled, 'mushy,' and slurred...How long did the episode last, and has it happened since then?

I know that months before my speech became really 'bad,' I was very aware of speech at times when articulating. It was as if I had to 'think' about each word as I was saying it. It was very strange. I think that weakness was occuring on a level that I couldn't pinpoint, so wasn't consciously aware of it being caused by 'weakness,' but just aware that something was 'up' in that department.

I completely empathize with you. Losing the ability to speak is extremely terrifying. I was also a major chatter box, and have been singing for most of my life.

Let's hope it was a brain fart. Sometimes the speech can be affected with MG and it's not too severe (from what I've read about other people's experience). You might just have an episode or two, and it'll go away. For example, I've had very few episodes with ptosis- ones that I could count on one hand maybe. Maybe you were just very, very exhausted. When I'm very tired, muscles that are normally not affected by my MG become affected (like my eyelids, with a touch of DV), but it's very unusual for me.

Nicky
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