FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
|
![]() |
#1 | ||
|
|||
New Member
|
I've had MG for more than ten years, and just recently learned from a new neurologist that taking a multivitamin with magnesium may be contributing to worsening MG symptoms. I couldn't believe no doctor had thought to tell me that sometime in the last decade!
Apparently magnesium causes an exacerbation of symptoms in MG. And a daily dose, well... not good. I never even considered that something in my vitamins could be a problem. Also, a lot of antacids and laxatives have it too, so check the label. I've yet to find a multivitamin without magnesium, so I take a few of what I consider the most important supplements individually. Hope this helps someone. Sam |
||
![]() |
![]() |
![]() |
#2 | |||
|
||||
Wisest Elder Ever
|
Magnesium stearate in vitamins is not absorbed into the body.
It is inert. It is used as a "flow" improver so the powder will come out of the hopper smoothly and into the tablet press properly, or fill a capsule properly. If magnesium OXIDE appears on a label, very little of this is absorbed either... studies show 4%. To give a comparison, 3 oz of almonds have 270mg of magnesium! One cup of oatmeal has 57mg. Here is a link with good information including RDA: http://lpi.oregonstate.edu/infocente...ium/index.html Multivits in general do not provide much magnesium if any. The studies I have seen mentioning HIGH dose magnesium use in patients with MG involved IV mag sulfate given to women with MG who had eclampsia. (malignant hypertension of pregnancy). I have not seen studies involving RDA levels of magnesium. From 1990: Quote:
Quote:
Most doctors do not even know that magnesium oxide is useless. And I would not expect them to understand what is in a standard multivitamin either. If you care to give me the brand I can look it up for you. But if it says magnesium stearate.... don't count on any absorption at all. Magnesium stearate is not soluble and melts at 88 C. It is a fatty waxy material not a significant source of magnesium. It appears on just about every Vitamin label, as inert ingredient. two other sources: http://www.absoluteastronomy.com/top...esium_stearate and http://www.raysahelian.com/magnesiumstearate.html The commonest cause of high dose oral magnesium is Laxatives given to purge before tests. In fact Fleets Phospho Soda has been taken off the market. Enemas given too often by Fleets will also present significant problems. edit to add.... it is not just vitamins that magnesium stearate is found. Most RX drugs have it too. You can find the inert ingredients listed on the insert the pharmacy can give you that comes with the bottle, or on rxlist.com has many ingredients too. Therapeutic amounts of magnesium are not in these dosage forms because that would create a HUGE pill...one that most people could not handle. Here is the link to Mestinon: http://www.rxlist.com/mestinon-drug.htm Quote:
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Last edited by mrsD; 12-11-2009 at 10:34 AM. |
|||
![]() |
![]() |
![]() |
#3 | ||
|
|||
Member
|
I can't take ANY multi-vitamins. Dr. never told me not to it's just that they make me very sick. I only learned from this site that it makes MG worse, I always thought I was just allergic to them. {still think I am allergic, as I really get sick, not just weak}
|
||
![]() |
![]() |
![]() |
#4 | |||
|
||||
Elder
|
Welcome to NeuroTalk Sam!
![]() ![]()
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
|||
![]() |
![]() |
![]() |
#5 | ||
|
|||
Grand Magnate
|
Sam, Is your MG getting worse? For a doctor to point to a relatively harmless vitamin (in small quantities) as a reason for that should scare you!!!! There are other, more common, reasons why someone with MG would get worse like not enough/right medications, a new thyroid or other condition, etc.
Maybe you should see your primary doctor to talk about checking some basic things like thyroid to make sure nothing else has changed. Like Mrs. D. said, we need magnesium. Yes, high doses of it can cause a myasthenic crisis. And, yes, vitamins are not regulated by the FDA but there are still guidelines for them. If you are eating a balanced diet, you may not need a multivitamin. Talk to your primary doctor about that too. Again, please get help if your MG is getting worse. And if your doctoring is getting worse, please seek out a 2nd opinion from another neurologist!!! Annie |
||
![]() |
![]() |
"Thanks for this!" says: | mrsD (12-14-2009) |
![]() |
#6 | |||
|
||||
Member
|
Hey guys,
Just wondering if anyone's every tried Greens plus bone builder by Genuine Health...It's a powder...I've heard good things about it, but I'm a bit worried because it says that people on rx drugs should not take it without approval from a physician... I'm going to ask my doc. about it, but I'm sure he'll just be like, 'yeah, it's fine,' and wont even look at the ingredients (need to find new family doctor yesterday)...Just wondering if anyone's tried this...I'm excited to try it because the ingredients all look promising, and i've heard such good reviews (although they've all been from healthier people)... One other thing...There's ginko biloba in it, which makes me sorta uneasy...I've always avoided that stuff because it gives me the shakes, but the woman at the health food store said that if anything, she finds that it makes her sorta sleepy (the Greens plus) so it's better to take it at night...Do any of you know if Ginko affects MG at all? |
|||
![]() |
![]() |
![]() |
#7 | |||
|
||||
Wisest Elder Ever
|
Can you put up the ingredients for me to look at? Or at least give me a link to them? I'll see what I can do for you.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
|
|||
![]() |
![]() |
![]() |
#8 | |||
|
||||
Member
|
Sure, thanks Mrs. D!
This is for the 'bones part... http://www.genuinehealth.com/greens-...uilder-formula and this is the 'Greens' part http://www.genuinehealth.com/greens....greens-formula Thanks again! ![]() Nicky |
|||
![]() |
![]() |
![]() |
#9 | |||
|
||||
Wisest Elder Ever
|
I am sorry.... this is a very confusing website....I cannot find exactly what you are using from it. I see prices...very high prices however. One formula for bones mentions vitamins but not their amounts or types....I don't like that website....I never recommend products that make you work to find the ingredients or conceal them with fancy wording.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
|
|||
![]() |
![]() |
![]() |
#10 | |||
|
||||
Junior Member
|
Magnesium is necessary. If you research, it appears on common lists for MGers to avoid, however real data is not there. I have been magnesium deficient and had to take supplements. If you are pregnant, magnesium can be a problem, as it can for any pregnant woman. As far as I can tell the reason magnesium ended up on avoid lists was because of a report of problems with one pregnant woman. Not all of the avoid items on the drug list apply to everyone or actually are the result of research; anecdotal stories are given the same credence as real research for MG.
Bill |
|||
![]() |
![]() |
"Thanks for this!" says: | DesertFlower (02-06-2010), Nicknerd (12-19-2009) |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
multi-vitamin injection need to find | Vitamins, Nutrients, Herbs and Supplements | |||
Multi-Quote | Community & Forum Feedback |