Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 01-05-2010, 09:50 AM #2
my92rs's Avatar
my92rs my92rs is offline
New Member
 
Join Date: Dec 2009
Location: Saratoga Springs,N.Y. area
Posts: 5
15 yr Member
my92rs my92rs is offline
New Member
my92rs's Avatar
 
Join Date: Dec 2009
Location: Saratoga Springs,N.Y. area
Posts: 5
15 yr Member
Default

Hello,
Your not alone in this feeling. I have been like this almost daily for the last week now. I think I am feeling okay until I get out of bed, then I walk like I am drunk and sometimes I even have that hung over feeling in my head like I was up partying all night. I have fallen over my 3 german shepherd too. It doesn't take much to throw me on balance when I am this weak. I fall into the walls at times too. My legs and arms have been really weak all week. I drop things all the time and I have to have my hubby wash my hair in the shower for me because my arms get to weak to hold up over my head. At least I manage to do the shower by myself with the help of a shower seat. I also just got a toilet seat riser, it was getting to hard to get off the toilet with my weak legs. It is much better now. Going up stairs is so very hard for me. If I get to tired, my breathing becomes an issue. It feels like a tight band around my lower rib cage,awful pressure and then I get gasping for air. It is only relieved by laying down on either one of my sides.This with the breathing all started on Thanksgiving morning. I had to go to ER and spent a week in the hospital getting all kinds of tests done. Still no answers. I am waiting to get in to a MG Neuro my regular Neuro managed to set up for me. These hospital just don't see enough MG to understand it.
Well good luck and take care and don't fall and get hurt, that is all we need as if we don't have enough problems. I reall feel what your going through and it isn't any fun at all. I tell my friends, I feel just like a rubberband, when my legs get tired, I say I HAVE to sit down before I fall down.
my92rs is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nicknerd (01-05-2010), PMCPMC (01-05-2010), rach73 (01-05-2010)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Falling and more falling! Stitcher Parkinson's Disease 12 01-05-2010 09:11 PM
Falling ConsiderThis Peripheral Neuropathy 11 01-17-2009 11:03 AM
Falling ConsiderThis General Health Conditions & Rare Disorders 1 03-10-2008 02:06 PM
Something falling from the sky Chris Multiple Sclerosis 32 01-18-2008 09:10 PM
PD and falling ol'cs Parkinson's Disease 11 04-29-2007 10:27 PM


All times are GMT -5. The time now is 05:04 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.