Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 02-15-2010, 10:53 PM #10
dog lover's Avatar
dog lover dog lover is offline
Member
 
Join Date: Aug 2009
Location: mo
Posts: 267
15 yr Member
dog lover dog lover is offline
Member
dog lover's Avatar
 
Join Date: Aug 2009
Location: mo
Posts: 267
15 yr Member
Default Long term prednisone usage

Nicky,
My Dr. had drop from 60 to 50 for 2 weeks then I dropped to 40. He wants me to stay there until I see him in April but I'm like you and plan to try going down on my own. If things stay ok at 40 I will drop down to 30 March 1.

Oh my gosh I know what you mean about the scales saying one thing but looking at yourself and wondering what has happened!!! My face is starting to fill out and my arms and stomach. According to the scales I have gained about 9 pounds but it feels like 25. I HATE it!!! YES pred sucks. I went to my chiropractor today and he gave me a good talking to about how dangerous this medicine is. He swears it is poison. I feel so much better after getting an adjustment today but am now more scared than ever about the damage this med is doing. He suggested going on a gluten free/dairy free diet at least for a few months to give my body some time to kind of work on healing itself. As bad as I want totally off the pred I don't want to take cell cept or Imuran either because they have serious risks also. I don't know what I'm going to do if my symptoms come back like they were before. I am going to get serious about changing the way I eat and exercising regularly. I take several vitamin supplements too. I figure anything is worth a try if it will help me feel better. How are your symptoms from tapering? Are you staying pretty level?
Kendra
dog lover is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
prednisone!?? long term use, at low doses??? sabimax Medications & Treatments 8 06-02-2009 02:38 PM
long term effects Cedar Epilepsy 3 09-30-2007 06:09 PM
MS Interferons, long-term use AfterMyNap Medications & Treatments 7 05-15-2007 05:10 AM
Long Term Care - Please Help! oldgrammy Alzheimer's Disease 4 04-30-2007 06:22 PM


All times are GMT -5. The time now is 05:06 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.