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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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 Hi, I'm so sorry you're going through all this.
I just wanted to pipe in and let you know that ALL Tests for MG, can come back negative, and you still have Myasthenia Gravis.
You can also have a negative blood work this time, and during the next flare, it can be positive. I'm so sorry to have to let you know that, I know it just adds to all the frustrations.
There are other conditions that can cause some of the MG symptoms, anything from Narcolepsey right down to Diabetes. Some Auto immune diseases..etc.
But you do sound like the classic MG patient. If you have any questions at all, you're more than welcome to ask me. You can even send me a private message if you like.
Please know, many many MG'ers have been where you are. I was first sero-negative, and then sero positive.
Most importantly, seek out a specialist who has other MG patients, and is familar with understanding the symptoms of MG. Not all Neuros are a like unfortunately.
Love Lizzie
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04-30-2010, 12:26 PM
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