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Old 05-17-2010, 06:21 PM #4
madnurse madnurse is offline
Junior Member
 
Join Date: May 2010
Posts: 14
10 yr Member
madnurse madnurse is offline
Junior Member
 
Join Date: May 2010
Posts: 14
10 yr Member
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Thank-you all for the replies. My nuerologist is aware of the abnormal CT scan. he pointed it out to me (and gave me a copy of the report) after my PCP just told me that it was normal. They also found a small nodule in my right lung (12mm) for which my PCP referred me to a pulmonologist. She said she didn't thin it was anything, but since it was larger than 10mm, they needed to follow up on it. But the abnormal tissue in the area of the thymus has not raised any red flags? Not knowing much about the thymus or MG, I am not sure how significant this finding is??

I tested negative for ACh antibodies, and they also tested me for a bunch of other AI disorders which came back negative.

My doctor's seem to be taking a wait and see approach, which I am sure many of you know is frustrating. My double vision is constant and makes me nervous with driving and working. And the numbness in my face just plain freaks me out! But it does help to know that other have had the same symptoms and eventually got diagnosed. I have another neuro appt next week. Usually they see me on Mondays (best for my schedule) but this time I made sure that I schedule it for late in the day and week, when my symptoms are at their worst. I'll keep you posted.

Thanks for the supprt!
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