Hi everyone,

I just thought I would update you all with what has been going on with me as I haven't been on for months and months - well it seems like that.

Also welcome to all the newbies and I hope that you are managing to get answers to your questions.

I have been very poorly and been in bed a lot of the time. Unfortunately it seems I have developed a new condition on top of all the other poo I have to deal with!

I have been suffering with constant nausea, vomiting and stomach pains for around a year. In June I was hospitalised as my abdomen swelled so much I looked like I was 9 months pregnant. Since then I have been pretty much on a daily diet of morphine and tramadol.

I saw a consultant surgeon in August and after actually listening to me ( the first Dr in a long time) he believes I have gastroparesis - paralysis of the stomach / stomach doesn't work properly. I am vomiting undigested food from meals I have eaten 9 hours earlier ( sorry to be graphic) I am rarely hungry and somedays I can't even process liquids.

The consultant I saw believes that the gastroparesis is another symptom of this undiagnosed neurological condition that I have. Symptoms include plummeting blood pressure, blood pooling, breathing problems, weakness, fatigue, facial weakness, swallowing problems , ptosis. Maybe this is a weird presentation of MG or a totally new neurological illness that I have. As this guy I have seen is a surgeon I wont be seeing him again as I dont need an operation. I am currently waiting to see the gastro team.

I have spent weeks in bed with nausea, vomiting and pain.

For some good news I have resolved the issue with my numb feet and hands I had low b12 serum levels - 178, the cut off is 180 in the UK and it has been a battle to get treatment. Within 5 days the numbness went from my feet , mentally I felt a lot clearer and I only get numb hands/ fingers about once a week now. I opted for tablets rather than injections as I had some injections recently and the site was painful for weeks afterwards. Having got much worse sickness wise its a battle to get the darn things down and stay down!

Im really sorry its been so long since I have been on but I really have been awful. I just hapen to be having a reasonable day where I am only facing the battle of not vomiting, not swelling and pain.

Has anyone else on here developed gastroparesis?

Thanks
Love
Rach