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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Yep my double vision cleared up rather quickly, with the help of pred and mestinon. It rears its ugly head if I am very sick and run down. I havn't had any for about 2 years, thankfully, as soon as I get it my neuro ups my pred..... My right eye droops to, and my Mum and Sister always can see how bad I am just by looking at my face :-)
I've started using a cotton mattress protector hopefully to stop some of the sweat reaching the mattress....... Yes I love this place, for the support and being able to help out people, I also learn new things still even after nearly 8 years!!! Kate
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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"Thanks for this!" says: | pingpongman (10-11-2010) |
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#2 | |||
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OH thanks! That's the same meds I'm on except I take Neostignine also. Now that really gives me hope. If I can get the double vision to clear I think I can cope with the rest.
God I love this place! Mike Quote:
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#3 | |||
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I also take mycophenolate, or cellcept. I'm down to 15mg of pred on alternate days.....my neuro says I might never get off it......I really hope one day I do
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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