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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I am wondering if anyone has tried Astragalus root as a supplement. I have considered taking it for about a year and have become serious about it recently. I would like to hear of positive, negative or neutral results from a real person.
Here is one link to information: http://www.ncbi.nlm.nih.gov/pubmed/19526753 Previously I found an article that suggested astragalus could reduce the number of acetylcholine receptor antibodies, but I can't find the article tonight. I understand that many people are hesitant to try herbal supplements. We should always be careful and I am not suggesting that anyone else try Astragalus. I also don't need to be warned, I understand the risks, many herbs are drugs, too. I hope everyone is doing well...
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Dear, how was your experience with Astragalus ? Could you please share it with us.
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"Thanks for this!" says: | DesertFlower (11-24-2011) |
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"Thanks for this!" says: | DesertFlower (11-24-2011) |
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I tried Astragalus tea, and am not sure how helpful it is. It seemed to make so that I had less ups and downs in my symptoms, which was nice but I found this result odd. It truly seemed to make so that I had no crashes but it also limited my extra good days. I drank it as a tea once a week for about three months. I still drink it on occasion, when I feel weaker than usual. I think my symptoms have steadied off with the help of this tea, but definitely have not gone away. I noticed a definite decrease in the number of times when my body goes suddenly weak and I end up on the floor, but, you know how MG is, maybe it was just one of my better times. I don't want to come to a concustion without trying it weekly again for a while. I did experience a side effect...when I tried astragalus tea more often that once a week it gave me minor headaches, which is why I decided to stop drinking it regularly. Headaches are not a good sign. In my experiments with tea and herbs, I discovered that Red Raspberry tea does wonders for MG (no miracle cure, lol, just helps ease the symptoms some), much more than astragalus or any other thing I have tried besides magnesium and vitamin B12, and with no side effects at all, and helps with other things, too, such as menstrual cramps (no pain at all!! The most amazing thing if you are a woman!). Of course, I am not a doctor, and don't want to recommend anything to others...please talk to your doctor before trying any herbs. My neuro told me to go ahead, but also told me that there was nothing he knew of that would be helpful, and so I experiment slowly. I do wish I knew more people who tried herbs and foods as medicine...but please be careful if you do so. Thanks for asking Rdmorena. ![]()
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The effect it had on you sounds real and also fits with some of its know pharmacological actions.
http://www.ncbi.nlm.nih.gov/pubmed/17509559 I also know that astargulus is considered as traditional Chinese treatment of myasthenia. But, only in certain sub-groups of patients. ( I have no understanding of chinese medicine so don't know how this choice is made, other than what is written in the integrative medical literature-Pi deficiency, which is chinese to me). I do not know how safe it is (short or long term). The meticulous studies and safety parameters that apply to medications in the western world are not, to the best of my knowledge, required for Chinese herbal preparations. I know that there are some on-going early phase studies of this herb in cancer patients, which suggest that it is safe, but there is not enough conclusive data yet. I would regard it as any other form of experimental treatment. |
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"Thanks for this!" says: | DesertFlower (11-24-2011) |
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Thank you Alice. I appreciate this information very much, and appreciate even more than the info, that you didn't criticize my choice for self-treatment, I somewhat expected criticism.
I do see why this herb is promising as a treatment, but I don't feel comfortable using it more often than I mentioned above due to the headache. I do think my symptoms have improved some since trying astragalus and plan on drinking it weekly again if I start having crashes again, but I will not be drinking it regularly as I don't think it is safe to use daily. Of couse, I am no expert with herbs, herbs as medicine is a family tradition and hobby of mine and that is all. I'm so thankful not to be spending time laying on the floor in a puddle of my own drool because I can't move (sorry, I know that is gross, but it has happened to me many times after overdoing it), I'm so thankful, brings tears to my eyes remembering those times on the floor. I do think this lessening of my bad times is due to astragalus and other herbs, vitamins and foods...not that there is any cure to be found in these methods, but I do see more stability to be found in them over the Mestinon, especially since my MG is not considered severe. I am thankful for mestinon, too, because it helps me through those absolutely worst of days, but am extremely tired and frustrated (and angry at times) with the ups and downs associated with it. For me, the better I feel one day, the worse I expect to feel within the next few days when taking Mestinon...I'd prefer a steady middle ground, and I think I am finding it (said quietly, MG is so unpredictable, don't tell the MG I said this, it might punish me, lol). I am down to 1/8 of a Mestinon pill every 2 or 3 days, and while I definitely still have MG symptoms they are manageable and haven't had me in bed or on the floor for a while now. I feel as if I am healing and it feels good. I am starting to ramble...I am trying to say thank you to the food, vitamins and herbs, I know they have helped me. I do feel uncomfortable about possibly encouraging someone to use astragalas. For anyone reading this, please be careful, as Alice said, this is an experimental treatment and might not be safe for everyone. Happy Thanksgiving to all. ![]()
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. Last edited by DesertFlower; 11-24-2011 at 01:32 AM. Reason: when I hit enter while typing, the post saved..edited to finish my post. |
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