Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 11-01-2010, 02:43 PM #4
Annie59 Annie59 is offline
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Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
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Personally I do have some success with getting cold. I best like a big giant gel pack from the freezer across my chest over my diaphragm and another across my back behind my lungs. I even had a neuro tell me to take a cold shower once when I called and said my breathing was worse. I dont know that this is like for you as some say sudden cold can make them worse or sudden heat. For me getting hot for any reason makes me worse and is what put me in hosp the first time. My hosp visits have all but one been in the July. I had them give me ice packs in the hosp and they were these great long cloth things filled with ice and they worked even better. If you can get the inserts for cooling vest or get one that goes around part od your body like neck and waist maybe you can run some. Cooling vest didnt work for me but I use the inserts as they stay cold longer and will buy someting other than the vest at some point. The vest I had only had front inserts and that didnt keep me cool enough. Steelevest doesnt make the best version I dont think.

Annie59
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