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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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Do any of you have muscles that jump. Mine will jump sporatically over my whole body. They don't last but a few seconds, but you can see them jumping under my clothes. They are painless but just a little bothersome. When I was on Mestinon 60 mg twice a day, they were a lot worse. My eye would jump like crazy. My muscles were jumping even before I was diagnosed. I have not read where this is happening to anyone else. I just wondered if it is coming from MG or something else. busybusy
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#2 | ||
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Junior Member
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My muscles DO jump, and like you, I've not read anything about that! I'm not sure if we share the SAME jumping though.
MY jumping is like.. well.. if I'm sitting next to my husband while we're watching TV, and my arm muscle will jump, it will kind of nudge him. He'll think I was trying to gain his attention, while really my arm was just jumping. I HAVE started having a lot of the under the skin kind of muscle jumping of late, but that's not the majority of my jumping. Quote:
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Kim |
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#3 | ||
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Junior Member
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This may not be relevant, but,while on mestinon, my neck muscles have been doing the same thing...had to decrease the dosage at times cuz of this....lasted for hours, then subsided...if I'm careful with dose, it is better now...
Dottie |
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#4 | ||
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Member
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On rare occasions, my legs would jump, while I'm lying down. Mostly, my muscles twitch on my legs.
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#5 | ||
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Junior Member
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Quote:
My husband says he can feel my muscles jumping when I am next to him. While at work, I can see my shirt sleeve jumping when they began reacting. Everytime I went to the neuro, he always wanted to know if my muscles were still twitching. I told him yes. It just seems strange. My limbs doesn't jerk or anything, it makes me think of popcorn popping. Thanks to all for responding. busybusy |
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#6 | ||
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Member
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I'm not sure if what we are experiencing is the same or not. Prior to starting Mestinon I had "jumping or twitching" muscles all the time. Since starting the med the jumping and twitching have been greatly reduced. I still experience them quite a bit if I get very tired or overdue it. I also noticed they increase when I'm due for a dose of Mestinon. Some people also have the same reaction from to strong a dose of Mestinon.
Also, google Muscle Fasciculation, this is a symptom of MG and can also be a benign condition. Rachel
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You never know how STRONG you are, until being STRONG is the only choice you have!
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#7 | ||
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Member
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#8 | ||
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Junior Member
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agreed, I can tell when the meds are wearing off when things are twitchy. It is very similar to the twitchy sensation i used to get when doing something that pushed my strong muscles past tired and was still going.
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