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Old 12-03-2010, 02:16 PM #3
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DesertFlower DesertFlower is offline
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Join Date: Aug 2009
Location: Tucson, AZ
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15 yr Member
DesertFlower DesertFlower is offline
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DesertFlower's Avatar
 
Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
15 yr Member
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MG is confusing, it comes and goes.

For me there are triggers that make it worse such as
-cold weather (both winters with MG have not been so good for me)
-sudden heat like sitting near a space heater/furnace vent in a cold room
(although hot weather, above about 80 degrees and up to 105 degrees, makes my MG better)
-processed food
-chemical exposures such as perfume or pesticides
-any activity, especially repetitive ones
-stress (the worst one)
and I could go on with the list of things I have found to trigger MG. I am keeping a record, which is the best way to identify these things. The list continues to grow, mostly with specific foods, places and people to avoid.

But sometimes my MG gets worse and I can't figure out why. I wake up one morning and have a hard time getting out of bed and difficulty brushing my teeth and hair and there were no triggers that I know of.

As for what to expect, it seems that everyone is different and it is best to keep your own record so you can know what to avoid. This has been important for me because the few times I have overdone it on the things that trigger symptoms I get really bad for 3 to 4 weeks and that is miserable. I want to avoid that situation when I can.

My MG symptoms have never completely disappeared but I had two times during last summer when they almost disappeared and I had to cut my Mestinon back to 15 mg per day. Those were wonderful days! I am now looking forward to next summer since that seems to be the only time when good days are possible. These cold days make me constantly weak and if I turn up the furnace higher so I can be warm my legs give out on me...I can't figure out what to do with the heating situation, I'm either cold and weak or comfortable yet collapsing.

I hope any of my rambling helps.
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