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Old 12-13-2010, 12:06 AM #2
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Doctors do not look at drug reactions BEFORE you have a diagnosis of MG. There are drugs to be cautious of if you have MG.

They diagnose MG with a clinical exam, hopefully thorough, antibody tests, EMG, RNS or SFEMG, sometimes with an exercise EMG, muscle biopsy and, sometimes, breathing tests. Antibody tests are specific to MG. EMG's are not and a positive result can be from a number of diseases. A muscle biopsy often looks for inflammatory diseases or mitochondrial cytopathies. What is sort of funny is that they "claim" not to be able to see the neuromuscular junction in many adults.

I know you are grasping at straws to get some help but this approach won't help you. I honestly believe that you need to simply write a simple list of what your symptoms are, when they occur and the severity or not of them.

A reaction to a drug does not necessarily mean you have MG. You could be having an adverse response that anyone could get or an allergic reaction. Drugs and the reaction to them does not help doctors diagnose MG. Only the MG-specific drugs of Tensilon and Mestinon, etc.

Let your doctors be the doctors. Don't "profile" yourself as this or that - it won't help you. Simply find nice, caring doctors who will do what they can to help and go from there.

Annie
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