Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 01-08-2011, 12:37 PM #3
Stellatum Stellatum is offline
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Join Date: Feb 2010
Posts: 1,215
15 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
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Very good advice from Annie and from suev. Your local Muscular Dystrophy Association chapter should be able to tell you which neurologists in your area have the most experience with MG, or at least with diagnosing neuromuscular disorders. Myasthenia Gravis can often be diagnosed with a blood test. But MG is a rare enough disease that you really need a specialist! At the very least a neurologist, but preferably one with a special interest in MG.

Please feel free to post questions here. Most of us have been through a long journey to get a diagnosis (and some of us are still undiagnosed) so we completely understand what you're going through--the anxiety and uncertainty, and the fear of what's going to come next. We are very eager to share what we have learned, so as to help you through in any way we can.

Abby
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