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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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The last couple of days have been very hard for me, as I seem to be getting alot of my symptoms back. The last two days- I have become so weak that I cant lift my right arm and my right eye goes completly shut. That hasnt happened for a good 7 months or so.
Earlier this evening in the shower I had trouble washing my hair, and body as my arm got tired. Along with the arm weakness today and yesterday I had some diaphragm weakness yet when i woke up it was gone. I have a question to pose.... so heres the story: I texted a picture of my eye to my doctor to show her the weakness, as she believes the Imuran is working great- its working better than the cellcept but not anywhere what I need it to be...school starts in a few months. Anyway- she says it always looks like that..and it was almost all the way closed (which when i relax my forehead muscles it really is almost closed). I did this all before my nap- yet when I woke up from my nap i felt better in terms of breathing and eye weakness yet arm weakness was still there... She responded with- you need another single fiber EMG....this will be my 3rd. I just dont know if im faking this all or if it is real? I know that sounds RIDICULOUS, but i feel like I should be able to deal with this weakness that I am having...but if im going to school again soon, for PREMED, i need to be able to study alot and not nap everyday like I am now! So I guess my question is should i go for the EMG test and do you think my symptoms are real? Or am I making them up? I know thats stupid again...but idk. im at a loss here. Im working with my mom 4-5 days a week...get up early get home early but go to the gym as well.....and I cant stop going to the gym...its my ONLY way to stay sain here my last 30 days before I move. thanks for listening... |
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