Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 01-21-2012, 06:03 PM #23
suev suev is offline
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Join Date: Jun 2009
Location: Texas
Posts: 748
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suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
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Welcome Seacoast - glad you found this forum. You will find that we are all quite different in the way MG effects us and our lives. For me, in the beginning, I experienced fatigue of specific arm muscles ... and not much else. Gradually it has progressed to weakness in legs and neck at times, but not general fatigue or tiredness. And I have no eye involvement.

Re: Mestinon
For me, small amounts more frequently is the trick. In the beginning, I took a tiny amount (15mg every 4 hours), now I take 30 mg every 3 hours. I tend to be quite sensitive to most medicine... but every one is different and with Mestinon it can take a while for person to find the best combination of amount and frequency. This has to be done with your doctor though - not experimenting by oneself!
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