Let me start by saying I haven't been formally diagnosed yet but hoping to soon. I am a 31-year old dad living in Minnesota and was able to meet with a neuroophalmologist early on with my symptoms. I am experiencing Droopy Eyelid and double vision but have not experienced many other symptoms yet.

The MRI and CT Scan both came back normal. My antibody bloodwork also came back normal but the Tensilon test showed signs of MG and the 60 MG mestinon I am taking every 5 hours has done wonders so all signs point to MG. (Although I am incredibly twitchy about an hour or two after taking it. Anyone else experience this?) The SFEMG is being scheduled to confirm.

I am looking for any other males (or other young active people) that have been diagnosed. I have run marathons and triathlons for a number of years and while I certainly recognize my 'normal' will be changing, I would love to hear some success stories of those that have been able to remain active with proper treatment.

Thanks again to all in this formal and of the virtual family that I don't yet know but am already thankful for.

- TriHead

Feel free to PM me as well.