It looks like they are saying that it brings it on if you already have it or the tendency to have it. Not that it caused it totally in a normal person. Is that correct?[/QUOTE]

Yeah, you're right. I had thought I saw another article suggesting that it caused MG, but this isn't the one. I'll look some more. Thanks for noticing.

Abby

90 minutes of the truth.

the FDA is an " out of control rogue " agency.

its all about " protecting big pharma and the money pouring in " to keep the ball in play.


http://www.youtube.com/watch?v=h0CQrL5nzwo



People are destroyed from a lack of knowledge.

" It ain’t what you don’t know that gets you into trouble. It’s what you
know for sure that just ain’t so..........."

From a sociological point of view, I find it very interesting that on the one hand there are MG patients who are ready to receive extremely aggressive treatments, and on the other hand there are those who wouldn't even take a mestinon pill, because it is made by a pharma company.

I can understand both.

MG is "advertised" as a "nice" illness with which one can lead a completely normal life. The treatment for MG is "advertised" as very mild with minimal side effects. Patients with MG are told that they are "lucky" to have this illness.

There are very few clinical trials in MG, because why bother to find a better treatment, when the current treatments are so effective and have so little side-effects?

In the reality neither is true. MG is not a "nice" illness. It is an illness which effects every aspect of your life. Even those that have a good control of their disease (with the price of serious side effects) have to make adjustments in their life. MG is not well-understood, but very poorly understood.

I am constantly told that the patients I have met are not "representative" of the MG population. Because, most MG patients are doing so well and busy with their life that they don't come to support group meetings or internet forums.

I doubt this.

I think that much more likely, most MG patients are made to feel that they don't know how to cope with their illness. Most MG patients feel guilty for not being able to lead a normal life (like they should), most MG patients are made to feel guilty for not putting enough efforts, or not being "positive" enough, or not "wanting" enough to recover. Most MG patients are made to feel guilty for not being content with being "stable". Most MG patients are being told that because they can push their neurologist's arm, they are not as ill as they "think".

I once attended an MG support group meeting. I was very ill at the time and required respiratory support just from the effort of sitting in my wheelchair.
One of the patients came to me after the meeting. He looked the picture of health. he walked at a normal pace and there was not way you could guess he was ill.
"Don't worry" he said to me "I was like that a few years ago, but now I am doing great".
I was really glad to hear that as it gave me hope for my complete recovery and being able to lead a normal life.
"What kind of work do you do?" I asked as I was interested to know if it required significant physical strength.
"Work?!" he looked at me with disbelief "I don't work. I retired on disability. I have a few hobbies and I just enjoy life".

I think that some MG patients are not ready to have to adjust to this illness, suffer the side effects and potential risks of the currently available medications (that haven't changed much over the last 30 years, in the face of enormous advances in the treatment of numerous other diseases) and at the same time continue to have a "positive" approach.

Unfortunately, most physicians and MG patients do not want to be told that their emperor has no clothes.

Shopster,

I know nothing of Dr. Hyman or his philosophies. If what Alice says is true, he doesn't sound half bad. You appear to be doing him a disservice and insulting us at the same time. You are making him sound as if he wants everyone to stop their medical treatment (which according to Alice isn't true), and you are telling us we we are sheep who should not be taking pills.

I'll be the first to admit that there are problems with the system. I'll go even further and say (as an Obama supporter, no less) that I don't think the affordable healthcare law is the answer. I think it was poorly structured and will have to be fixed sometime in the first ten years before the system begins to unravel.

But I digress. The pills we take on this site give us a quality of life we would not otherwise enjoy. For most of us here, they give us our strength back. For me, they go further than that and give me the ability to walk, and control intractable pain. For you to come here and tell me that I am poisoning myself and should stop taking my medicine is insulting, it is wrong, and it discounts the 15 years of hell I went through to get to the point I'm at today--where I can wake up and actually be glad I'm still alive and want to get out of bed in the morning.

I will look into Dr. Hyman, but only because if he is as Alice described, I do not want my poor opinion of you to prejudice me against him.

We all currently work within a broken medical system which has to be fixed. But until it is, it is the system we are stuck with and using it to get life saving treatments or improve our quality of life is better than receiving no medical care at all.

I think it can go further than that. Before my diagnosis, while my health was declining, I didn't want to admit that I was as sick as I was. In the back of my mind I was afraid I was dying of MS, so I stopped going to my neurologist (who was no help anyway, but that's another story), further more I bought a manual sports car, which I was in no position to get rid of once my illness progressed to the point that I was having trouble driving it (and I could see that day coming when I bought it--I now love my car, btw).

My point is, though, that I could see all this coming and was not willing to admit to myself that I was in a period of relative calm before a storm.

What you are describing is denial, which is a phase many (not only MG) patients go through.

What I was referring to is that medical text-books and patient booklets describe MG very differently than what it really is. This (in my opinion) leads to unrealistic expectations, frustration and lack of serious clinical research.

I also think that the fact that your neurologist was of no help is not a different story, but part of the same story.

i am not telling you to do anything.

your body is attempting to heal itself but can only do so if you put the correct fuel into it .

if it comes in a box or you order from a drive thru window, your health will not improve.

franken food loaded up with toxic chemicals to make it look pretty in the produce section is verboten.

if you cook it and kill the enzymes, it is now dead fuel.

if it is pasturized, dead fuel.

white powder will mask the underlying issue but can stabilize in the short term.
to continue to dump this toxic waste into your body over the long haul is not a cure to any issue.

all big pharma powder will " blow out your liver and kidneys over time " slows your metabolic process and cripples your immune system.

i have news for you..........
the current medical system is doing just fine according to big pharma and it will not be fixed.

that is just false hope.

they spend 6 million a day just to lobby the hill.

pocket change just to keep the congressional puppets dancing their tune.
your elected officials know who is buttering their bread.

i started this thread to get your " heads out of the sand " and start to question standard medical practice for what it really is.

corruption is everywhere in the " unhealth system "

" disease management " is the name of the game.

ask any retail pharmacist.

i have 2 in laws who are pill retailers and make a very nice living filling the scripts.

when i pose tough questions to them, they just walk away.
further confirmation the entire game is rigged.

i will tell you this.........

if you see Mark or one of his partners in crime, the protocol will change.

system based medical is not pill pusher mentality.

btw, you are poisoning yourself.

blind faith can be very strong when the system slots you in to the rank and file.

ball in your court.


s

....................................

Alice,

you don't really believe that......

Depression, mania, psychosis, or other psychiatric symptoms.

http://en.wikipedia.org/wiki/Prednisone#Side-effects

Shopster, I fear that you are the one with your head in the sand. Going to an "all natural" lifestyle is not going to cure anything. Food additives were not used (except salt and sugar which are natural) up until the 20th century. Was there any disease before the 20th century?

By the way, about pasteurization, the AVMA published an article back in the '80s about the history of veterinary medicine. I wish I had the reference, but I have lost it. It was specifically talking about food inspection. There was a statement made that in 1900, over 100,000 children died each year in the USA from drinking milk. Now we have modern evil farming in which the cows are handled unnaturally and the milk is pasteurized. How many children die from drinking store bought milk in America that is handled according to labeled use? None. Zero. Zilch. Nada. And for the "anti-farming" crowd, I suggest you visit a dairy farm. I have never seen a more content looking bunch of animals. They love their lives.

I have a friend that went on one of those all natural diets thinking that it would cure his MS. I don't know what all he ate, but part of the diet involved eating 3 pints of blueberries a day. The only thing that eating 3 pints of blueberries will cure is constipation.

I think you got what I said backwards.

Go back and read the entire post and don't take things out of contents.