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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-21-2012, 10:10 AM | #11 | |||
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Oh, and I had Mono at about the same age as you did (I was 18 when I had it, I'm 52 now), and like you, I never felt like I "got over" it.
Everyone thinks that Mono is highly contagious, but the fact of the matter is that it is only "contagious" to people who are susceptible to it - most of the population has a built-in immunity to it. The incidence of Mono in the Celiac community is somewhat higher than in the general population. Not sure why, but my guess is a compromised immune system. Please note that I am not suggesting that you might have CD instead of MG; one doesn't "cause" the other, and you can have both conditions at the same time. While both are chronic conditions, CD is quite easily managed - a GF diet will usually clear up most problems within a year, and those problems will usually remain at bay as long as a GF diet is maintained. By the time MG is diagnosed, a lot of damage has been done to the body that cannot ever be undone - we use medications to slow the progression of the disease and to ease the effects of the disease. Last edited by teresakoch; 09-21-2012 at 10:26 AM. |
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09-21-2012, 10:48 AM | #12 | ||
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Thanks for your post, even if it turns out I don't have MG, I've learned a lot about it on this forum. It makes a lot of sense, if the receptors are the problem then, you're right, no amount of exercise will help that! Also I completely forgot but I have been tested for Celiac twice - blood test twice and a endoscopy biopsy. During those tests I was negative and I ate a ton of wheat and other stuff all the time. I also forgot that I was tests for SLE and that was ruled out too. |
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09-22-2012, 06:29 AM | #13 | ||
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Absolutely compensating for many things to point of not consciously realizing there was problem
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09-22-2012, 11:30 AM | #14 | |||
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Just be aware that you may still be gluten-sensitive - there are many people who test negative for CD who still have problems with gluten (my husband is one of them).
You may want to try a gluten-free diet for a month to see if it makes a difference in some of your symptoms (just be aware that there is no such thing as "gluten lite" - you have to completely eliminate it from your diet). For a lot of people, they don't realize how gluten was affecting them until they quit eating it. If it IS a problem, trust me - staying on a GF diet isn't hard for people who are truly gluten sensitive. Just wanted to put that out there for your information - |
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09-24-2012, 01:48 PM | #15 | ||
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