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Old 09-21-2012, 10:10 AM #11
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Oh, and I had Mono at about the same age as you did (I was 18 when I had it, I'm 52 now), and like you, I never felt like I "got over" it.

Everyone thinks that Mono is highly contagious, but the fact of the matter is that it is only "contagious" to people who are susceptible to it - most of the population has a built-in immunity to it.

The incidence of Mono in the Celiac community is somewhat higher than in the general population. Not sure why, but my guess is a compromised immune system.

Please note that I am not suggesting that you might have CD instead of MG; one doesn't "cause" the other, and you can have both conditions at the same time. While both are chronic conditions, CD is quite easily managed - a GF diet will usually clear up most problems within a year, and those problems will usually remain at bay as long as a GF diet is maintained.

By the time MG is diagnosed, a lot of damage has been done to the body that cannot ever be undone - we use medications to slow the progression of the disease and to ease the effects of the disease.

Last edited by teresakoch; 09-21-2012 at 10:26 AM.
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Old 09-21-2012, 10:48 AM #12
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Quote:
Originally Posted by teresakoch View Post
Oh, and I had Mono at about the same age as you did (I was 18 when I had it, I'm 52 now), and like you, I never felt like I "got over" it.

Everyone thinks that Mono is highly contagious, but the fact of the matter is that it is only "contagious" to people who are susceptible to it - most of the population has a built-in immunity to it.

The incidence of Mono in the Celiac community is somewhat higher than in the general population. Not sure why, but my guess is a compromised immune system.

Please note that I am not suggesting that you might have CD instead of MG; one doesn't "cause" the other, and you can have both conditions at the same time. While both are chronic conditions, CD is quite easily managed - a GF diet will usually clear up most problems within a year, and those problems will usually remain at bay as long as a GF diet is maintained.

By the time MG is diagnosed, a lot of damage has been done to the body that cannot ever be undone - we use medications to slow the progression of the disease and to ease the effects of the disease.
Teresa,
Thanks for your post, even if it turns out I don't have MG, I've learned a lot about it on this forum. It makes a lot of sense, if the receptors are the problem then, you're right, no amount of exercise will help that! Also I completely forgot but I have been tested for Celiac twice - blood test twice and a endoscopy biopsy. During those tests I was negative and I ate a ton of wheat and other stuff all the time. I also forgot that I was tests for SLE and that was ruled out too.
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Old 09-22-2012, 06:29 AM #13
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Absolutely compensating for many things to point of not consciously realizing there was problem
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Old 09-22-2012, 11:30 AM #14
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Just be aware that you may still be gluten-sensitive - there are many people who test negative for CD who still have problems with gluten (my husband is one of them).

You may want to try a gluten-free diet for a month to see if it makes a difference in some of your symptoms (just be aware that there is no such thing as "gluten lite" - you have to completely eliminate it from your diet).

For a lot of people, they don't realize how gluten was affecting them until they quit eating it. If it IS a problem, trust me - staying on a GF diet isn't hard for people who are truly gluten sensitive.

Just wanted to put that out there for your information -
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Old 09-24-2012, 01:48 PM #15
Azriel Azriel is offline
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Quote:
Originally Posted by teresakoch View Post
Just be aware that you may still be gluten-sensitive - there are many people who test negative for CD who still have problems with gluten (my husband is one of them).

You may want to try a gluten-free diet for a month to see if it makes a difference in some of your symptoms (just be aware that there is no such thing as "gluten lite" - you have to completely eliminate it from your diet).

For a lot of people, they don't realize how gluten was affecting them until they quit eating it. If it IS a problem, trust me - staying on a GF diet isn't hard for people who are truly gluten sensitive.

Just wanted to put that out there for your information -
Thanks Teresa, it's a good idea. I do have food sensitivities and I have to avoid a bunch of things. Dairy and soy are the two things I avoid because dairy gives me welts in my throat and soy makes drowsy. I don't notice any reactions with grains but my allergy doctor tested me for everything and said that the only grains I'm not sensitive to are rice, millet, and oats. Are those three gluten-free? I do mostly stick with those three mostly. I take calcium and vitamin D since I don't consume dairy.
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