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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#10 | |||
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Junior Member
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I was diagnosed on September 28th of this year and was in plasmapheresis on October 1st. At first my neuro would not let me start with mestinon because he wanted to see what the pheresis and predisone were doing before masking the symptoms with mestinon.
After 2 to 3 weeks he introduced the mestinon with 60mg with each meal. This was helping me out but over night I would ride the roller coaster back to the bottom and wake up starting over again. On November 5th he prescribed the mestinon time span for over night use. He also had me up the daily dosage to 90mg at meals and gave me the go ahead to experiment if needed. I find for me it is best if I take 60mg every 3 to 4 hours depending on my activity level. After 7 weeks of constant double vision I am now seeing well and driving with my vision clear 95% of the time. My general fatigue is lagging behind still in my arms and legs but is improved. I am hoping that will follow along soon. I am also taking prednisone and mycophenolate. So I am like a human cocktail! Good luck moving forward. Roger |
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