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Old 06-21-2013, 02:00 PM #6
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
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Did they start you on any meds yet? Did you get the results of the SFemg? The process is very slow for diagnosis, I share your frustration. I am 6 months after diagnosis, my MG is still not stable in fact it is worse. I have not not found a therapeutic med strategy.

I still think thymectomy stats suggests thymectomy is the best route and hope to have one soon. My next neuro visit is in 3 weeks. Did they do a scan of your thymus. Often MGers have hyperplasia or enlargement even if they do not find a nodule. Stats show most MGer have a benefit from a thymectomy. Also make sure they test your thyroid. A lot of Mgers have thyroid and MG and they make each other worse.

kathie
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