I agree - I wouldn't want the responsibility of a Doctor; they have to make their judgement and ultimately stand by it, which must be difficult enough without pressures of harsh penalties if they make a genuine mistake. I personally don't think my case warrants any complaint - my first Neuro could well be right in his diagnosis and I may not have MG but it got me wondering how others felt/coped when I read some of the stories on here - I think I may feel wronged in some of their shoes and I feel some of them would have had better treatment and respect if they were an animal!! I have honestly been shocked and saddened by some of the stories....but also hugely in awe of the determination and persistence they showed when I think I would have just scurried away!!

If (and its still an "if") my muscle/nerve tests prove MG I would like my first Neuro to know purely because he was so adamant that I do not have the disease and refused to do any test other than the AChR antibody test based on that judgement - as I said, he could well be right but when I saw the Neuromuscular Specialist and he felt my symptoms and history are "Highly Suggestive" of MG it shocked me how different a Doctor's (and Neurologist's) judgement can be!

It also makes me wonder what the actual statistics of MG are - it seems to be quite common and almost accepted that a diagnosis is missed in the early stages and also for those who don't fit the symptoms or tests as some Dr's would like. So is there a percentage out there struggling on with half a life after being told there is nothing wrong with them who are too scared or simply don't have the energy to waste finding the right Doctor??