Yes, it frustrated me, a lot. Still does sometimes.

When I was first diagnosed ("you have very easily treatable neuromusculair disease") I looked it up. I felt very sick, but read all those things, heard all those things: I truly started to believe I had a disease that was like a vitamin deficiency: yes it caused me a whole lot of problems now, but when started taking pills it will be all over! Boy, was I wrong.
I was, and still am, very disabled due to mg.

I still get people who say; are you sure you have MG, because I looked it up and it does seem like it's very treatable. When a nurse saw me in my wheelchair, she said: but....er...there are so many treatments for MG, are you sure you've tried them all, because people with MG aren't suppose to be in a wheelchair.
An old friend of mine who has cfs wrote me an email, saying she wished she had my disease because that seemed so much less disabling than hers.

But even if all those pills make your life appear normal; working, social stuff, family, ..., you have to deal with side effects. That is not normal!
Maybe the weakness will be much less, but all the other things can have a huge impact too.