Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 07-11-2014, 11:23 AM #4
anon6618
Guest
 
Posts: n/a
anon6618
Guest
 
Posts: n/a
Default

I believe it's very important to do it 1) surely but slowly and 2) and tiny baby mg's down everytime.
My neurologist said to me: you can try to go take off 10 mg immediately, not even alternative days! (after over 2 years same dosage!) I said, thank you but not really interested in an Addison crisis meets MG crisis situation.

If you're on prednison for a long time, even a tiny step down can cause multiple feelings of bwaaauuuhhh. As long as it's not the MG kicking you down, you'll have to give it a few weeks and hopefully your body will adjust. But, please keep in mind to take it slowly (like you're doing), and if you're having bad MG symptoms call your doc. It's kind of hard to see if what you're experiencing is "just" overall weakness and exhaustion as a reaction of less prednisone, or if it's really MG taking his chance.


I hate prednisone taper. My hardest was around 15 mg (17,5 -> 15 mg) never been lower, and I guess if I can it will be even harder.
For me it's always a few weeks a hard time.

Oh, and are you on any diabetes medication? I have steroid induced diabetes, and had to think of it myself to taper down diabetes meds too. Surely, hypoglycemia doesn't really help.

Good luck and take care.
  Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Rituxan? huntress Myasthenia Gravis 3 06-16-2014 03:57 PM
Had my 4th Rituxan...waiting now huntress Myasthenia Gravis 1 05-17-2014 09:00 PM
Rituxan? huntress Myasthenia Gravis 5 04-22-2014 11:48 PM
Rituxan for MG Janet Kelley Myasthenia Gravis 10 07-30-2008 08:18 PM
Rituxan Snoopy Multiple Sclerosis 1 02-14-2008 07:21 PM


All times are GMT -5. The time now is 12:39 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.