Made me laugh!!

Annie,

I put the following smoothie together earlier in the year, with the great help of many in our forum:

The Potassium is a recent addition after the hospital. It was a bit low and I was not getting enough from two or three bananas that I was eating a week. It makes a 64-ounch batch.

I have one 16-ounce portion at my first meat, along with 1/2 cup of oats, and 1 cup of kefir. The 3 remaining 16-ounce portions throughout the day, or sometimes, into the next day. I blend it in a VitaMix.

• White Grape Juice (625)
• ½ Cup Imported Raw Almonds (275)
• ½ Cup of the Ultimate Meal (255)
• 2 oz 100% Soy Protein (120)
• 1 Banana (105)
• 1 Cup Kale (33)
• 1 Cup Cabbage (15)
• 1 Cup Spinach (6)
• 1 Cup Broccoli (65)
• 1 Cup White Grapes (62)
• 2 tablespoons of freshly ground Flax Seeds (90)
• Splash of Lemon Juice
• Splash of Lime Juice
• 1 inch Cube of Ginger Root (20)
• 2000 mg Vitamin C
• 1200 mg Calcium
• 8000 IU Vitamin D3

Total Calories: Around 1600

Supplements, most included in smoothie

• ½ Cup Ultimate Meal dietary supplement
• Calcium - 1200 mg
• Vitamin D3 - 8000 IU
• Ginger Root - 1 inch cube
• 2 a day - 1000 mg Omega 3 Fish Oil - EPA 300mg - DHA 200 mg
• 2 Tablespoons of freshly ground flax seeds
• Vitamin C - 2000 mg
• Turmeric - 350 mg
• Potassium - 99 mg

Sometimes it takes me two days to finish it. It does tastes great. I do eat other thing too. i store it in the refrigerator in stateliness steel Thermoses, filled to make the bottles airtight.

-Mark-

Katie,

I was infused for 5 days in the hospital. It's been nearly 3 weeks since the last infusion. I got two big bottles and one small bottle a day. I am feeling very strong with a lot of energy. My symptomless are mild and appear so far to be stable, not getting worse. I've been back to 60 mg Prednisone per day for a month.

If normal antibodies were infused during the treatment, how long should my positive results last?

I will be seeing my new neurologist Tuesday afternoon. His plan is to infuse once a month for 4 months, until the Cellcept starts working.

Any suggested questions that I should be asking new neurologist? I already Annie's list.

-Mark-

The first and so far last time I had IVIG it lasted about 6 to 8 weeks. I must admit I felt a lot better after the 5 day course, well once I had recovered from the anaphlylactic shock that occurred on the last day that is.

They infused me at a slow rate the first time, in case the IVIG induced anaphlylactic shock. I wonder what percentage of people go into anaphlylactic form IVIG?

-Mark-

For me it was a convergence of three things: The Prednisone taper with no immunesuppressor, stress filled summer (cab collision), and the first real hot weather of the season, approaching 100 degrees the day I went to the ER.

Do you have to fall of the cliff before they throw you the IVIG rope?

What was the reason you were refused the IVIG earlier? How can the mess around with the breathing issue!

I hope you have the same experience that I did with the Immune Globulin. I had improvement from the first day. My doctors and nurses noticed an improvement too. I continued to improve, even after the fifth infusion--and still going strong.

-Mark-