My name is Robert Horne and I am from Oakland, Oregon USA. I have other health issues that have allowed my disability SSDI for a period of 2 years in which my doctors were to resolve my major problems and return me as a productive member to society. On Sept. 26th 2014 I was officially diagnosed with Myasthenia Gravis. After reading very little about this disease I am sure that I have had this for several years now.

After seeing the neurologist and being told that I definitely have this incurable disease, I was prescribed Mestinon 60mg 4 times a day and Mestinon 180mg (timespan) at bedtime. Now, from the research I have done online that seems like a (break-neck) introduction to such a nasty drug with known horrible overdose side effects. My question to you is... Should I question my neurologists ability to treat me at this point or is this not an unusual First Dose for a 6' 2" male at 46 and 290 lbs.? Within 24 hrs. I was twitching, cramping, lost continence, puked 4 times, had pixilated vision, could not walk and felt as though I had food poisoning. I started this med. on Sat. and of course doc office closed Sun. so I stopped taking it Sun. Called Doc office on Mon. to speak to a nurse that told me to do it again!
Now I was born at night... but not LAST NIGHT! I told her #@%& THAT!
Today is Thur. morning still no call from the doc and I feel worse than I ever have.

I am embarrassed to admit it being a man... but I'm scared as hell!! I know very little about this MG and everyone around me acts like it's no big deal. My right eye is almost shut and wanders off on me... I can barely walk... I stop breathing in my sleep... when I can sleep... and I just got a letter from SSDI saying my benefits will end Jan. 1st 2015! Right about the time I get good and dependent on these new expensive drugs.

Hope you have a better day Than Mine,
UncleBob

P.S. Sorry if I come off like Lewis Black
or Bobscratch-Goldfart