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Old 05-03-2015, 08:49 PM #1
calamityjoan calamityjoan is offline
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Join Date: May 2015
Posts: 3
10 yr Member
calamityjoan calamityjoan is offline
New Member
 
Join Date: May 2015
Posts: 3
10 yr Member
Default new here and need advice please

Hi! I am wondering if anyone who is seronegative and sfemg negative has ever been able to get a diagnosis? I have all the hallmark symptoms ( eye drooping, loss of voice, chewing fatigue, arm, leg, neck fatigue ) In fact, these symptoms have become so bad over the past year that my PCP who believes this is MG has signed for a disability plaque for my vehicle and that I could benefit from a service dog. I have both now and do find my service/mobility dog invaluable. My neurologist thinks this is MG but would not diagnose until I saw a neuromuscular (MG) specialist. I did, he did an SFEMG and said this is not MG and sent me packing back to my main neurologist. Thankfully my main neurologist gives me Mestinon, but although this helps my body it makes my eyes worse, so it is rather a conundrum; do I want to move or do I want to see! At this time I would be willing to go anywhere in the country for a doctor who will make the diagnosis and treat me. Fortunately, I have great insurance. It is difficult for me to comprehend how anyone can go from being an athlete to disabled in a years time and not be able to receive a diagnosis or help. Any neuro referral would be greatly appreciated! Thanks for your time. You can pm me if you prefer.
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