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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Senior Member
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#2 | ||
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Junior Member
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Sorry to hear you are so miserable...your feelings sound well deserved.
![]() Don't know what to tell you, as nothing really works for me, either. I'm not "as bad" as I was a year ago, but still no healthy person would want to trade with me, even for a day. For me, no matter how wonderful the treatment, or how MUCH of the "wonderful" treatment I'm on, I will still flare up during hormonal shifts (ovulation and menses.) There's no getting around that and I must say, I'm a bit curious as to how life will be after menopause (which is still a bit away for me...) Hope things get better for you very soon! Missy |
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#3 | |||
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Wise Elder
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I am so sorry your not feeling better. You've had a rough ride these past few weeks. I am praying that this is a rough patch and you'll be feeling better in time.
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__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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#4 | |||
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Senior Member
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Thank you! I do know it will get better in time, and I do know my doctors are doing everything they can to help, but it just gets so frustrating @ times........Prayer and lots of luck will (and faith ) will get me through........though I am so thankful I found this site - everyone is so kind to me. I really appreciate it!
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#5 | |||
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Member
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Hi Erinhermes
sorry to hear you're feeling down ![]() I'm going through a period of my mg being bad, and don't know why, and dont want to tell my neuro, cos he'll just want to up my prednisolone!!!! I still think my idea of selling our mg on e-bay is a great idea ![]() ![]() Hope you soon start to feel a bit better, take care ![]() redtail |
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#6 | |||
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Senior Member
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The irony of that whole situatuion is that I called my neuro to have him up my Prednisone and he decided that at this point plasmaphoresis would be more helpful
![]() ![]() ![]() Is it super hot there? We've had a huge heat wave here in Texas, and I think that's what is making our mg worse - my neuro won't let me go outside in the heat......... When you get a chance, drop me line and let me know how you are feeling.......Take care! Erin Quote:
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#7 | |||
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Senior Member
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Thank you! I know I must sound like a "pitiful pearl", but I jsut keep hoping/praying for a miracle.....The problem is I just keep getting sick since my thymectomy and I know it is hindering my remission, plus no one wants to hear that they may be chronic....When were you diagnosed? Have you had a thymectomy? I had one b/c the doctors pretty much told me that was my only hope for a "normal" life.......it's just so darn frustrating
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