I am newly diagnosed, I have had double vision like twice, does this usually get worse as the disease wears on? Does generalized MG mean you are getting worse?

Ocular MG means it only affects your eyes, and I have met one man who had this.

Generalized MG means it affects everything else, ie swallowing arms legs etc. I have left an answer in you post, so rather than answer twice I will let you read that, if it doesn't answer you questions, please feel free to ask more. I'm sure someone here will be able to help you.

take care
redtail

I had problems seeing for 6 months before I was diagnosed! The only thing that helped me was Prednsione.......The Mestinon did not do it for me. My eyes were literally rolling around in my head - too weak to focus - my hubby had to drive me the last few months, as no one really believed how weak I was............

If the meds do their thing, your vision will clear almost immediately - @ least it did for me!

Erin

So I had my Thymus removed 5/1/09, and it wasn't fun but i am not fully back to work and pretty much back to normal. However this last week my symptoms have been really bad, especially my vision. I was just stepped down from 35 to 30mg of Prednisone by my nero. I am also on 500mg CellCept 2x's a day, 4-5 60mg Mestinon a day, and MultiVitamins.
This week I have had really bad double vision, and been pretty symptomatic all week. I must say its pretty sad to go through the pain of surgery and see no short term benefit from it!! I am thinking of getting another round of IVIG, but I dont know if I can take the time off work to do it. Is there any other treatment schedules besides the 5 visits in a week plan? Thanks!

Regards,

John

Forgot to mention that I did get a call from my Neuro on Thursday, apparently my white count is a bit elevated. I went in for a urine test, and will be going in for another blood test next week. Not sure if that is relevant, but fgured I would include it in the intrests of full disclosure. Thanks!

Regards,

John

i had dvision luckily longer distance like driving and walking. have you ever tried a patch -i was ok driving if i closed 1 eye. not the safest but when it was constant it worked until i started on meds. good luck!!!

John,

The thymectomy is not for short term gain. Your body still needs to heal back the damage that it has done to itself before you'll go into remission. You're looking a year to three down the road for the thymectomy to do everything for you that it is going to.

I didn't have to deal with double vision with my MG and not to sound glib, but have you considered an eye patch for when your vision starts to split? Obviously you still need to find the right drug cocktail to control the symptoms, but something on hand to deal with the double vision right away may be worth having.

Best of luck

Cheers,

Brian.

John,
I have double vision also, ALL the time, I find if I tilt my head to the side it helps a lot. I was also a computer programmer years ago but with my vision problem I gave it up. I now can do just about anything because I have trained myself, so to me it is like single vision, once you live long enough with it you become adjusted {30 years} . I hope yours eases up soon.

I think i experience double vision about 75% of the time...which is very annoying, but i'm not sure what else can i do. I've done all the treatments and i'm on prednisone, and imuran now.

Tracy

i feel for you.it must be so frustrating-my dv was only walking and driving after 1 pm. i also closed 1 eye and that seemed to help 75%. has any one suggsted a patch? it took 2 wks on mest for it to clear so hang in there-something will work! hope it's a good day for all! have a great 4th of july w/e!!