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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-09-2009, 08:13 AM | #21 | ||
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I'm on prednisone, and have been for years...so i think my body is immune to it. It doesn't help with my double vision at all. I did receive my cPaP machine last week, so hopefully this will help with my breathing.
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07-09-2009, 09:59 AM | #22 | |||
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I have been having trouble with dv for the last few months. I was wearing a patch to drive and work on the computer.
I spoke with the eye doc and he said that prisms in my glasses would probably help, but it had to be my decision. I tried using IVIG to see if it would make a difference, but no change in the vision (energy level much better - I've been on IVIG for about 4 years) I finally caved and went back to the eye doc and they spent about 2 hours trying to get the correct level of prisms. Think about it, do I get the prism to correct my vision at Noon? 1:00 pm? 4:00 pm? - it's get worse as the day wears on! We settled on 4:00 pm (I see 2 of everything, one above the other, no overlapping, etc) I got my new glasses last week and they really work! Of course, I can't wear them until the dv gets bad (usually around noon), but they definitely correct the dv. I thought they would look like big googley eyes, but they don't look at different from my regular glasses, just a little thicker. For the first couple of days, everything had a band of rainbow light around it, but my eyes have adjusted and I don't see the rainbow any longer. They were expensive, but fortunately I have vision insurance and they paid all but a small portion. My glasses are expensive anyway because I have bi-focals and I add glare reducers, etc. Just wanted to let everyone know who has dv for a while, there is a way to fix it so you can continue to work. |
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"Thanks for this!" says: | erinhermes (08-13-2009) |
07-17-2009, 06:46 PM | #23 | ||
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Junior Member
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I also have prism in my glasses, and my sunglasses...and it doesn't help me at all. Don't get me wrong i'm MuSK Positive...so i do believe i'm a little harder to treat than most.
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08-13-2009, 11:35 AM | #24 | ||
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I read a couple of posts that mentioned prism's help and I am is the process of investgating. Going to a Neuro-Opthamologist is a few weeks (not a regular opthamologist)
I am in the same boat as you. Double vision is bad. Work involves computer a lot and I generally like to watch TV. I have been using a patch at home. While driving I blacked out one of the lenses on sunglasses w/ electrical tape so I dont have to run around looking like a pirate. Always wear my sunglasses outside and rest my eyes as often as possible. Looking from Neuro-Optha something that will cut the glare down and possible prisms. I noticed something interesting with a test I conducted. Take your hands and make let like binoculars (i guess you could use two toilet paper rolls too) It seems like when I block my peripheral vision that i have no double vision. Not that you can walk around with toilet paper rolls attached to you gead but just an observation. When I tunnel my vision it seems to help though. May looks for sunglasses that block the sides. Anyway, go check with a Neuro Optha - I am! |
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