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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Hi Erin,
Sorry I can't offer any advise or help, just letting you know that I'm in the same kind of situation. I haven't been diagnosed with MG (they're looking into it), but the medication for my MS is expensive ($1,600-$2,000/month before insurance) and it's not the only one I'm on. I also have several specialists. My husband has one full time job, one part time job, his own computer business, and gets paid a little bit per month and per call now for the fire department. We are struggling but we will make it. Oh I guess I do have some advise, try going to the company that makes your medicines and see if you qualify for their discount program. Every company has to write off so much for taxes each year, so they have programs where people can get there medication for a discounted price or sometimes free. I'm sure you would have to fill out paper work and they probably go by income but it's got to be worth looking into. The company that makes Rebif (my MS med) has me on a program so that after my insurance I only have to pay $50/month for it. My co-pay after insurance would be $389/month. I can't think clearly right now so if this doesn't make sense sorry, just ask and I will try and talk to you about it later, when I can think. Good luck with all the medical bills. Kristie Quote:
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"Thanks for this!" says: | erinhermes (02-11-2009) |
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