IVIG questions

erinhermes · 05-21-2009, 08:06 PM

It is done in 3-5 day courses - mine are 5 days.......so my week is shot but boy is it worth it!

I DO have a friend that only gets 1 day treatments, but I don't think hers are very effective.....You don't want to go through it do not truly "FEEL" the effects!

THe plamsa exchange is also very effective,,,though a bit more invasive - OK a LOT more invasive, but it does work!

I've had the exchange for 5 days followed by 4 days of IV IG several
months ago - after that I just felt tired, but Dr. I was worried about me having another crisis.......Did I mention how much I love that man?

I go in monthly for my tune up - we are trying to stabilize me for a while.......I still have my PICC line in and have to go in weekly to have it flushed and cleaned.......I don't like having a PICC line but my veins are shot! Darn pred!

I bet you are going to LOVE IV IG!!!!!!

When do you go in?

Big hugs!
Erin

Quote:

Originally Posted by Maxwell'sMom

Thank all so much.
So, it's just a one day thing, every so many weeks?
My neuro said we won't know how often until after the IVIG, and then when I start feeling weak again, is the time to do it again.
I just didn't want it to be done over several days if I could avoid it.
Maybe I was thinking of Plasma, as that's the other option.
Pat, ((((hugs)))) and More (((((hugs)))))...thank you
Mary, I'm so hoping that I'm not going to have any allergic reactions. He said with the way my body is, he'll make certain that they'll watch carefully. Especially since it wasn't that long ago being on a vent for me.
Erin, thank you so much, And wow, sure hope I get that much juice, as my attic could use a real good cleaning!!

Sooooo, I was wondering, when do you have to have your's again, and um...a...hmmmm, where do you live...

lolol
I just want to feel good again. But having serious issues making me so ill.
thank you all for your input, I really do appreciate it.
Love Lizzie

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