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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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Hi People,
sorry I kind of disappeared from the raider for past month or so, been extremely busy with University exams and assessments and although I have been reading most post I haven't had a chance to reply to any or questions that I have received. We ll I hope everyone has been feeling good, I have been pretty good thanks to iVig but what a surprise to me, my neuro recommended having a thymectomy, referred me to thoracic surgeon and now i have the operation booked in 2 weeks and this all happened within a week so I'm kind of freaking out, my worst fear is saying goodbye to my kids and never waking up again, i know im thinking of the extreme, fingers crossed it will all go well, so I have a busy 2 weeks ahead of me "Pink Concert" next tuesday them wed, thurs, fri iVig following monday pre op appointment then surgery on thursday yaaay, so wish me luck, I have to rush need to get kids ready for bed, will post again later Have a good night ![]() Melissa ![]() |
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#2 | ||
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Junior Member
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good luck on your upcoming weeks! isn't it funny how we moms have to get all our ducks in a row? i used to spend 24 hrs before being hosp for another illness- vomiting etc but i had to get all the shopping laundrylista made beds changed-but remember to slow down alot of those things don't matter the kids would rather you sat and read or palyed a game with them! prayers are with you!!
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"Thanks for this!" says: | mm80 (06-14-2009) |
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#3 | ||
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Member
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Melissa,
I had the thymectomy in February, 2009. I have three kids 8, 4, & 3 so I know all about your concerns. I had about two weeks to prepare for my surgery as well. I went through a whole range of emotions during those two weeks and finally ended up in a very good place when I was wheeled into the operating room. The surgery went very well and I am doing so much better now. I know that you will do great! Take care ~ Melanie |
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"Thanks for this!" says: | mm80 (06-14-2009) |
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#4 | ||
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Member
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Good luck Melissa. I had my thymectomy in Aug. 2008. I knew I needed surgery one month before that and then had the surgery 2 weeks after that. I have a 10 and 14 year old. My husband and kids were a great help and very supportive, they still are. I am a teacher and was getting ready to start a new school year, so I had to get things in order there.
Have fun at the Pink Concert! |
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"Thanks for this!" says: | mm80 (06-14-2009) |
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#5 | ||
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Member
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I had my thymectomy in May 1991 and I had a 3 month old son and 9 year old son so I know what you mean about getting things together. They have come a long way since 1991 so I am sure your surgery will go very well just remember that a folded up sheet or very firm pillow will be your best friend for a while after the surgery {you will be holding it close to your chest} Keep smiling
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"Thanks for this!" says: | mm80 (06-14-2009) |
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#6 | ||
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Joanmarie, good reminder with the pillow. I had to bear hug mine whenever I sneezed, those sneezes hurt bad. I was afraid I was going to break my chest open when I sneezed.
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"Thanks for this!" says: | mm80 (06-14-2009) |
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#7 | |||
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Senior Member
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Ahhhhhh......surgery...i remember seeing my surgeon on a Friday and being given the option of having my surgery for Monday or Tuesday.....I chose Tuesday
![]() On the positive side, you are getting IV IG b/4 the surgery! That will work wonders in making sure you are STRONG! ![]() Getting all of your ducks in a row is just smart. Nothing is going to happen - you are going to be GREAT, but it may help alleviate your anxiety..I know it did for me! I must have packed and repacked 50 times! LOL! Can you say OCD? Make sure to have a chest pillow ready and waiting for you - you are going to need it! You may also want to sleep sitting up for a while - hurts a lot less that way. The absolute BEST part is that you may go into REMISSION after your surgery! REMISSION! ![]() Big, big hugs sweetie! Erin ![]() Quote:
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Erin . |
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"Thanks for this!" says: | mm80 (06-14-2009) |
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#8 | ||
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Member
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Good luck Melissa! Having the IVIG before the surgery will make a big difference and help make you stronger. I had my thymectomy in Nov. 02 and I am so much better and take only mestinon. In time you may go into remission! You are going to do just fine. As everyone has said, a pillow is going to be your best friend. We will all be keeping you in our thoughts & prayers.
![]() Hugs, Pat |
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"Thanks for this!" says: | mm80 (06-14-2009) |
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