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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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06-11-2009, 02:27 AM | #1 | ||
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Junior Member
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Hi People,
sorry I kind of disappeared from the raider for past month or so, been extremely busy with University exams and assessments and although I have been reading most post I haven't had a chance to reply to any or questions that I have received. We ll I hope everyone has been feeling good, I have been pretty good thanks to iVig but what a surprise to me, my neuro recommended having a thymectomy, referred me to thoracic surgeon and now i have the operation booked in 2 weeks and this all happened within a week so I'm kind of freaking out, my worst fear is saying goodbye to my kids and never waking up again, i know im thinking of the extreme, fingers crossed it will all go well, so I have a busy 2 weeks ahead of me "Pink Concert" next tuesday them wed, thurs, fri iVig following monday pre op appointment then surgery on thursday yaaay, so wish me luck, I have to rush need to get kids ready for bed, will post again later Have a good night ) Melissa |
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06-11-2009, 09:29 AM | #2 | ||
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Junior Member
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good luck on your upcoming weeks! isn't it funny how we moms have to get all our ducks in a row? i used to spend 24 hrs before being hosp for another illness- vomiting etc but i had to get all the shopping laundrylista made beds changed-but remember to slow down alot of those things don't matter the kids would rather you sat and read or palyed a game with them! prayers are with you!!
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"Thanks for this!" says: | mm80 (06-14-2009) |
06-11-2009, 09:46 AM | #3 | ||
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Melissa,
I had the thymectomy in February, 2009. I have three kids 8, 4, & 3 so I know all about your concerns. I had about two weeks to prepare for my surgery as well. I went through a whole range of emotions during those two weeks and finally ended up in a very good place when I was wheeled into the operating room. The surgery went very well and I am doing so much better now. I know that you will do great! Take care ~ Melanie |
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"Thanks for this!" says: | mm80 (06-14-2009) |
06-11-2009, 11:18 AM | #4 | ||
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Member
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Good luck Melissa. I had my thymectomy in Aug. 2008. I knew I needed surgery one month before that and then had the surgery 2 weeks after that. I have a 10 and 14 year old. My husband and kids were a great help and very supportive, they still are. I am a teacher and was getting ready to start a new school year, so I had to get things in order there.
Have fun at the Pink Concert! |
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"Thanks for this!" says: | mm80 (06-14-2009) |
06-11-2009, 11:30 AM | #5 | ||
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I had my thymectomy in May 1991 and I had a 3 month old son and 9 year old son so I know what you mean about getting things together. They have come a long way since 1991 so I am sure your surgery will go very well just remember that a folded up sheet or very firm pillow will be your best friend for a while after the surgery {you will be holding it close to your chest} Keep smiling
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"Thanks for this!" says: | mm80 (06-14-2009) |
06-11-2009, 04:21 PM | #6 | |||
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Senior Member
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Ahhhhhh......surgery...i remember seeing my surgeon on a Friday and being given the option of having my surgery for Monday or Tuesday.....I chose Tuesday...
On the positive side, you are getting IV IG b/4 the surgery! That will work wonders in making sure you are STRONG! Getting all of your ducks in a row is just smart. Nothing is going to happen - you are going to be GREAT, but it may help alleviate your anxiety..I know it did for me! I must have packed and repacked 50 times! LOL! Can you say OCD? Make sure to have a chest pillow ready and waiting for you - you are going to need it! You may also want to sleep sitting up for a while - hurts a lot less that way. The absolute BEST part is that you may go into REMISSION after your surgery! REMISSION! Have you read Brennan's posts? They are truly inspiring! He is WORKING and working out! Picture it! Big, big hugs sweetie! Erin Quote:
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Erin . |
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"Thanks for this!" says: | mm80 (06-14-2009) |
06-11-2009, 06:50 PM | #7 | ||
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Good luck Melissa! Having the IVIG before the surgery will make a big difference and help make you stronger. I had my thymectomy in Nov. 02 and I am so much better and take only mestinon. In time you may go into remission! You are going to do just fine. As everyone has said, a pillow is going to be your best friend. We will all be keeping you in our thoughts & prayers.
Hugs, Pat |
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"Thanks for this!" says: | mm80 (06-14-2009) |
06-11-2009, 09:17 PM | #8 | ||
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Joanmarie, good reminder with the pillow. I had to bear hug mine whenever I sneezed, those sneezes hurt bad. I was afraid I was going to break my chest open when I sneezed.
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"Thanks for this!" says: | mm80 (06-14-2009) |
06-14-2009, 10:18 PM | #9 | |||
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I hope you get fabulous results, melissa ! Good luck !
Mary
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Mary . |
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"Thanks for this!" says: | mm80 (06-14-2009) |
06-14-2009, 10:35 PM | #10 | ||
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Junior Member
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I just had my thymectomy as well. April this year. Are you having the transcervical, where they dont break open the sternum? Thats what I had. I hope this is an option for you. Either way I truly wish you luck. I am sure everything will go fine! I have 3 boys, 8, 9 and 11. I had to be in the hospital for 10 days. For plasma and then the surgery and recovery. That was very scary cuz hospital was hour and a half away from home! So I feel for you I truly do.
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