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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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New Member
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Originally Posted by prokopia
hello to you all!! i was diagnosed with myasthenia on April 09, since i am reading your letters and that was very helpfull to me. i am a female 39 years old /mother of two young children). i had a thymectomy before 4 weeks and i am really getting better everyday.... i want to share with all of you, especially with women, my choice of having a cosmetic procedure done : a "submammary incision with skin flaps" (a scar hidden under my breasts)...it was really a great choice as it preserves the upper chest skin free of scars ....and it doesn't show at all!!! i believe that this helps to forget....as you don't see it everytime you are facing a mirror. i took out an enlarged thymus and now my neuro suggested me to add to my mestinon treatment a antidepressant drug (Zoloft / sentraline hydrochloride), in order to help myself getting stronger! he claimed.... has anybody had a similar recommendation? nice meeting you P.S Sorry for any :mistakes in my english.. i know it is not always perfect.. |
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#2 | |||
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Senior Member
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Hello and WELCOME! You are going to LOVE this site!
![]() 4 weeks and you are already feeling better? What wonderful news! Sounds like you are on the road to remission! What a blessing! ![]() Just remember to rest when you are tired - I was up and cooking 9 days after mine and I truly believe that's why I am having kind of a hard time now......Granted, it's probably just me, but I just wanted to make sure you take care of YOU for the time being! I think it is grea that you that surgery! I had the regular one - with scars on my chest, but I consider them my "brands of honor" when people mention having them removed - after all, how many people have scars from a thymectomy? Not that many! How are YOU today? Are you feeling better? THanks for the positive words? Erin ![]() Quote:
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Erin . |
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#3 | ||
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Welcome to our "family" {by the way, your english is just fine} interesting surgery you had, when I had mine {18 years ago} there was no other option then across the neck and down the chest, but heck I don't even notice my scars anymore and when people do notice they just think I had heart surgery, sometimes I just agree so I don't have to explain
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#4 | |||
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Welcome to our group Prokopia!
I am so happy for you, feeling something good out of your thymectomy already ! What an awsome cosmetic idea, I wish I had had that done, as I am low in the boob area, & my scare goes all the way to my lower neck line, it's the pits! Glad to meet you! Mary
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Mary . |
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#5 | ||
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Thank you for your messages...but unfortunately by writing that i am already feeling better i ment i am feeling better regarding the surgery; that my chest pain is going away, that i am able to better hold with my hands, and able to sleep at last in a better way.
Unfortunately my MG symptoms are worse!!! all of them, and i even had one MG crisis 3 days after surgery (they had to give me oxygen and drugs / i was at the hospital at that time that was the good thing about it) and two minnor incedents during the weeks after surgery, but my neuro told me that this is something normal not to worry about!! the problem is that sometimes i worry a lot...a stresfull feeling that is difficult to control (these 5 months /from the day i was diagnosed till the surgery +++/ were a real nightmare for me, maybe that is the reason why my doctor wants me to take also antidepressant drugs apart from mestinon....it may help on my positive thinking!! think positive! |
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#6 | ||
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Member
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Hi Prokopia,
Welcome to the group! So glad to hear you are feeling so good already. Your thymectomy sounded very interesting. Not having the chest scar is great. I haven't been prescribed an anti depressant, but maybe someone else here can help you with that question. Take care. ![]() Hugs, Pat |
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#7 | ||
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Having MG is stressful not to mention you have young children. When I was DXed my son was 6 weeks old, so I understand your stress. As I said before, my thymectomy put me in remission but mind you it doesn't happen overnight. I am glad your pain is less and I believe it is normal for the MG to be worse {you did just have surgery} but it should get better, and remember to remind your Dr to check your medication levels often, to much meds can cause a crisis as well. Take deep breaths and try to relax {I know it is hard, but you can do it}
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