[jlange]

Hi, I am new to this list and hope to find some answers. I had a subarachnoid hemorrage (please excuse my spelling) last year in October and I am still feeling the effects. I haven't been able to return to work yet, largely due to headache and fatigue. I live in a small rural community so there is not a lot of support here and my doctor while very good has never had this happen to him nor does he take the medication he has prescribed. There are days when when my head feels like it is full of stuffing and I'm trying to think my way through all that stuffing, thats actually most days, headaches are pretty much a way of life and my eyes have been bothering me lately so I'm wondering if I suffered some damage to my vision (I will make an appointment with the eye doctor Monday) as a result of the bleed. My left arm and the left side of my head seem to ache constantly. My doctor prescribed topamax to help with headaches and it does help with headaches but when I take it I feel even spacier. It's a catch 22. I guess I'm wondering if the way my head and eyes are feeling is normal? Does anyone out there have similiar experiences? Thanks, Julie

[Blessings2You]

Someone will be along shortly with something helpful to share...I just wanted to welcome you to the community! This is an amazing place, and you'll find plenty of support here. Feel free to jump in anywhere, not just the forums that pertain to your particular issue.

[Kitty]

Hello and welcome to NeuroTalk! Here is the link to the Headache Forum in case you haven't visited there yet. Someone there may be able to relate to your situation.

http://neurotalk.psychcentral.com/forum32.html

Please feel free to visit any forum and join in wherever you feel comfortable. Sorry for the reasons you found us but I'm glad you're here and I hope you find some help here.

[Hockey]

Hi Julie,

Welcome to NT!

I'm not familiar with your condition, but I'm sure you'll find folks here who can help you with that.

I do know firsthand how a constant headache can wear one down. Headache treatment is a common topic of conversation for the post concussion crowd here on the forum.

I also live in a rural community and understand how frustrating it can be to access specialized care.

I feel the best things we can do are to reach out for support and to educate ourselves as much as possible about our conditions. Luckily, both of those things are easy to do here at NT.

Cheers

[(Broken Wings)]

Welcome to NT

24/7 headaches are difficult to endure. It compromises your daily routine. So sorry you're having these headaches. I hope you find relief soon.

[soxmom]

Welcome to our wonderful community. Such a great bunch of people
here with lots of good info to be had. Sit down and read a bit, I hope
you find anwers to your questions.

[azoyizes]

Hi Julie, and welcome to NT! This is such a great place with many friendly, caring, and helpful people.

We're so glad you found us!

[Darlene]

Welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene

[pabb]

Originally Posted by jlange

Hi, I am new to this list and hope to find some answers. I had a subarachnoid hemorrage (please excuse my spelling) last year in October and I am still feeling the effects. I haven't been able to return to work yet, largely due to headache and fatigue. I live in a small rural community so there is not a lot of support here and my doctor while very good has never had this happen to him nor does he take the medication he has prescribed. There are days when when my head feels like it is full of stuffing and I'm trying to think my way through all that stuffing, thats actually most days, headaches are pretty much a way of life and my eyes have been bothering me lately so I'm wondering if I suffered some damage to my vision (I will make an appointment with the eye doctor Monday) as a result of the bleed. My left arm and the left side of my head seem to ache constantly. My doctor prescribed topamax to help with headaches and it does help with headaches but when I take it I feel even spacier. It's a catch 22. I guess I'm wondering if the way my head and eyes are feeling is normal? Does anyone out there have similiar experiences? Thanks, Julie

if you take the topamax consistently, you MAY find the s/e lessening....perhaps a lower dose? that might give you some relief without the as much spaciness? good luck

[NurseNancy]

hi and welcome to NT.
it sounds like you've been dealing with a lot.
i don't know anything about your condition but there are other forums here. i'm sure they will respond to your questions.

i hope to get to feeling better.