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Old 10-02-2010, 11:53 AM #6
whisperstothesun whisperstothesun is offline
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Join Date: Sep 2010
Posts: 5
10 yr Member
whisperstothesun whisperstothesun is offline
New Member
 
Join Date: Sep 2010
Posts: 5
10 yr Member
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Hi. Sending you love because RSD is terrible, and at first the life changes feel unconquerable. I've had RSD for over 18 yrs, after a brutal car accident mangled me. I can relate to the "what if" and "if only" thoughts you mention realing about in your mind, but they are not helpful. You need all your energy to overcome and manage this right now. I did the same thing at first, but eventually I realized it changed nothing, and distracted me from productively seeking coping and disease management tools.
May I suggest a couple of things? It sounds like you are in very good hands, and also like you are one strong fighter (a trialthalon, afterall!), but in case you've not tryed these yet--- cranial sacral therapy is wonderful for RSD. It is the only "bodywork" I can endure. It is featherlight holds applied to the cranial and sacral areas to regulate the spinal fluid pulse, thereby relieving and relaxing the sympathetic nervous system. Nothing stops the pain completely, or we wouldn'y be here, but this really helps, and is often covered by insurance if the treatments are administered by a physical therapist. I would try asking your DRs. for a PT referral for this and this ONLY. NO other PT works, and will only make someone with RSD worse. ALso, I was wondering if you are vomiting from nerves or meds? Depending, I can make recomendations for this problem also, because after 18 yrs. "been there, done that" too. Hang in there, and feel free to ask me anything. I'm also new to this forum, but a veteran of the fight. love and light to you!!
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