Thank you for all the warm and fuzzy greetings! I hope to see you all around the boards as well.

In response to Jasper, I did not mean to insinuate that we were not capable of advocating for ourselves and our families, so I apologize if it read like that. It is just that so many of us look to medical professionals as better than we are and are therefore afraid to be a bit more demanding and aggressive to be heard. I was in the past, but am no longer. My son WAS a mystery diagnosis for six years!! The day I stood in the pediatricians office and told him I was not leaving until he gave him a referral to the Mayo Clinic was the day I hit bottom on my desperation level to help my son. I have not looked back since. I still feel terrible for all the years he suffered without help which is why I do my best to tell people I meet to fight until they get the answers. I send my prayers and well wishes to your family. Fight the good fight.

Hugs,
Deb