Hi there! I am new to this site. I did notice that the last post was over a year ago...so we shall see if anyone answers this one. I was Dx with CPS in March. Since then actually since I have had the sz my life has been turned upside down. I have lost my job with a hospital after 10 yrs. I was told I can't be a nurse...which I just got my LPN. I am on assistance which havent been since my first born was 6 mths...he is now almost eleven. At this point I have had numerous arguements with various MDs. I have even switched a few. Having the medical knowledge I do I see the many mistakes the doctors are making. I felt like a lab rat for new and improved drug on the market. I have been put on numerous medications all effect me in a negative way. They either cause weird feelings of psychosis, lethargy beyond reasonable, you name it. I am still having seizures. I refuse to take the medications. They never stopped while on them and I rather feel somewhat normal off them. Either way I am here to get my piece of mind out about what I am going through but really I am here to hear other individuals stories, feelings, concerns...everything!

Hi,

I'm new too. I don't know what your diagnosis is. I have atypical neuralgia. I've had it for 6 years. In that time I've seen over 13 eye doctors for eye pain, pain specialists, neurologists, rheum. I've been on medications that have made me incredibly sick to my stomach. One's that have caused hallucinations and nightmares. I'm currently on cymbalta, gabapentin, tramadol, and lorazepam. Like you, I refused any meds in the beginning. I became so suicidal from the pain that I wasn't in any state of mind to fight them on meds anymore. I still have pain and I'm affected by the meds with memory. I have to leave myself notes everywhere. I know how frustrating it is. Not one doctor believed I wasn't just out of my mind for the first 3 months. I can't work either and I don't collect. It's been VERY hard on me and my family. My daughter was 3 when I got sick and now she's 9. It breaks me when I think of how much of her life I've missed out on. I try to stay positive, learn what I can, but it doesn't look like things will improve anymore than they have. Not alot of options out there for my diagnosis (as yet...hope...hope) Well, God bless you and everybodies gotta vent sometimes!!

Kpnit,So sorry you are having no success with doctors or medications. I also wanted to welcome you to NeuroTalk!!

We do have a forum for those who Epilepsy...the link is below.

http://neurotalk.psychcentral.com/forum11.html

Wish I knew how to help you. I just didn't want you to go unnoticed. Best thing to do is just drop in anywhere...people always seem to know someone with your condition and can offer help.

Welcome to NT

So sorry you're in medical wonderland. A lot of us has been there.

You are really going through a rough time right now. I won't always be this way.

You might want to keep a daily diary of your symptoms, medications, foods, appointments, people you talk to. This can be very helpful after you get a few weeks or months to look at. Just do the best you can. Do it on a calendar.

I hope you find some peace soon.

Hang in there and keep asking questions.

There's lots of info here, so trying using the "SEARCH" above to find leads to your concerns...

Kpnit2gthr,

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here, just let us know how we can assist, we are a supportive and relaxing group of friends. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Hi. I can't imagine what you have been through. I just wanted to say "Welcome to Neurotalk"

You've been directed to the proper forum. I hope you get your answers.

Take care

Melody