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Old 02-04-2012, 09:59 PM #1
repinuj13's Avatar
repinuj13 repinuj13 is offline
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Join Date: Feb 2012
Posts: 8
10 yr Member
repinuj13 repinuj13 is offline
Junior Member
repinuj13's Avatar
 
Join Date: Feb 2012
Posts: 8
10 yr Member
Thumbs up Hello all, photophobic and trying to stay positive

Hello everyone,

I've just spent some time reading introduction posts and replies, and I'm very excited to join in the community. I hope to become a member that can both give support, and appreciate the support given.

My story is fairly unusual, at least it seems that way to me because no Dr. seems to know what is going on with me.

What I know is that my body, my brain, feels ill whenever I am exposed to light that is high in color temperature. Soft, warm light, even if it's still fluorescent, doesn't bother me. Bright, blue, industrial type lighting (getting more and more popular for its energy efficiency) starts creeping fatigue, nausea and an overall flu feeling. This lighting was put in my workplace 7 months ago, before that I didn't notice any problem, now it has become debilitating. The pain and illness feels like it has been compounding over the months, where I'm now at a point i don't want to get out of bed to go to work, I know i'll feel physically sick and miserable the entire day.

The good news is I have finally found a few Drs. who have seen/treated this before, yet even they don't really seem to know what's going on. In my online research I came to the conclusion that this wasn't an eye problem, it was a neurological problem, and I'm so glad I did because the neurologist I saw has an action plan for me!

I will post my story in more detail within a message board that fits. I don't want to bombard everyone with my issues when all I need to do is introduce myself : )

But if anyone has had experience with anything that seems even remotely close to this, I would love to hear from you. This struggle has been very draining. It has made me depressed to think that I will have to deal with my body being incompatible with the lighting that's sure to flood our world in my lifetime.....hearing from others who are getting through this would be so nice.

I look forward to conversing with all of you

-repinuj
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fluorescent light, photophobia

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