Hello
I'm new to the board. It seems to have a lot of useful information

Welcome to NT!

You've come to a wonderful place of support and understanding!
Let us know what brings you here and you'll find that
there are many caring people here, easy to talk to, and very down-to-earth, so make yourself right at home. Look through the different forums and post anywhere you feel inclined.

Just holler if you have any questions or need help in finding your way around.

It's great to have you!


Rae

Floyd,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Thanks for the welcome.
I was given an mri in December for weakness in my tongue,jaw area while chewing. My arms have also become sooo tired while hanging up clothes or washing dishes or even some times just walking. They have been going on for over a year. I've had two ncv test and also two emg test that were normal. The mri showed moderate diffuse cerebellar atrophy. My neurologist dx spinocerebellar ataxia. I had been having leg problems for 2+ years. I had been told it was the result from my lower back problems. I have severe narrowing at two different level of my lowere spine. My legs tingle and burn 24/7. I also have strange vibrations , like a cell phone is going off in my thigh sometimes. I now am waiting on my genetic test results to see what type of spinocerebellar ataxia it is. I'm worried but am glad to have a dx after all this time.
Sorry for the long post

Floyd,

Check into the following forum, there sure be some fellow members there to help you out.

General Health Conditions & Rare Disorders:
http://neurotalk.psychcentral.com/forum2.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Just bumping this thread. No one has replied, so please if anyone has anything to add please so. Thanks

Have you heard back from your Dr regarding the genetic tests?

I don't know much about ataxia, but the symptoms you describe in your legs sound very familiar. I battled horrible unrelenting burning pain in both my legs for 6 yrs.....went to umpteen different types of specialists tring to get a solid diagnosis.
I'm not saying this is what you have by all means, but what you describe in your legs sounds like nerve pain (neuropathy), as tho your nerves have been mis-firing.
It might be worth it to check out the Peripheral Neuropathy forum.
In my case, I had other issues going on, such as my thyroid wasn't functioning right. I have HyPOthyroidism. Have you had your thyroid checked lately? I was very tired all the time. I am since on maintenance meds for that, but all these issues I had going on kind of all worked together to create the 'perfect storm' in my body.

Here's the PN forum:
http://neurotalk.psychcentral.com/fo...aysprune=&f=20

My lower back pain from a slight scoliosis and arthritic deterioration also contributed to the neuropathy. The sympathetic nerve chain is responsible for the nerves that run along your lower extremities. I had a SNB (sympathetic nerve block) injection, which I responded very favorably to.
There are options out there to help control this type of pain.

Hopefully you will get some answers very soon. In alot of cases, it's a matter of process by elimination before diagnostic answers become evident.

Just throwin some ideas in there air....I certainly don't claim to know much , but when I read what you described about your legs, it really caught my attention.

Caring,
Rae